The Burbank, California-based non-profit organization phaware is a global association dedicated to creating awareness about pulmonary hypertension through engagement and technological innovation to discover and chart the course to a cure.
Pulmonary hypertension (PH) is a rare, chronic lung disease that affects the functioning of the heart and can lead to fatal right-sided heart failure. PH patients experience symptoms such as shortness of breath, dizziness and fatigue, which often can be mistaken for conditions like asthma and COPD. There is currently no cure for PH, but 12 FDA-approved therapies are available that can help patients live better lives. Unfortunately, none of these are approved for children, and without treatment, mean survivability is just 2.8 years. The development of a cure for pediatric PH — and for all PH patients — through new research is now a matter of urgency.