30 Days of PH: Grief

30 Days of PH: Grief
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Day 13 of 30 Days of PH⁣⠀ Topic: Grief⁣⠀ Evan shares her story of grief, @ladyevanne⁣⠀ ⁣⠀ Grief – is a word that is used to explain the pain of losing a loved one to death. The emptiness of not having a person in your daily life. Grief and PH are different in all aspects because when your son has been given the diagnosis, the grief of a life unlived is what you feel first as a mother. I never really thought about death, even though Sean reminded me time and time again that it could happen.⁣⠀ ⁣⠀ My son, Sean Wyman, was the poster boy of everything great about life with PH. He did everything he wanted and had a full life albeit a short one. On his 19th birthday, doctors said, “you have 6 to 18 months to live. Go home and get your affairs in order." So, he came home and sat. Immediately, we went through the testing for being put on the transplant list. But this was when you got on the list and prayed you were alive when your name reaches the top. ⁣⠀ ⁣⠀ He sat in a chair for a year, then he got up and said “I’m not dead yet,” and went back to school. First the Associate's degree, then the BA, MS, and finally his degree in Osteopathic Medicine. My son became a doctor! A healer! Unfortunately, death was closer than he or I thought. He died the day he was accepted for the third time for a transplant, a resident physician who changed lives just by being himself!⁣⠀ ⁣⠀ ⁣⠀ I was floored. Devastated to get the call that he was gone. It was unimaginable. Inconceivable. Complete denial on my part. Seeing his body sent me through shockwaves. I could accept it. I didn’t deal well at first with everything, then the Sean Wyman Superman was born from the grief of his loved ones. We had bracelets made in his honor, and they were sent all over the world. He created lips painted blue, and it became www.lipspaintedblue.com an explanation of PH for others.⁣⠀ ⁣⠀ ⁣⠀ Every moment of every day I miss my son. I honor him by sharing his story. If his name is said and he is remembered, he lives on. ⁣⠀ ⁣⠀ #30DaysofPH⁣⠀ ⁣⠀ #Grief

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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