30 Days of PH: Implantable Pump

30 Days of PH: Implantable Pump
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Day 17 of 30 Days of Ph ⁣ Topic: Implantable pump ⁣ ⁣ This is Monica’s story @monsphight⁣ ⁣ ⁣ At 17 years old, my world came to a screeching halt. There was no slowing down life in high school. I loved softball and was a bouncing cheerleader. I loved all things about life so when diagnosed with PAH, EVERYTHING changed! The only treatment 24 years ago was IV Flolan. Imagine having to strap a pump under your prom dress or wedding dress!⁣ ⁣ I adjusted to life connected to the tubing. I was forced to “grow up” very fast. To stay alive, I had to come home to mix my meds earlier than most kids my age. I tried going on SubQ Remodulin and I put in a great effort, trying it 2 different times. Once for 3 years and the second, for 2 years. The pain just controlled my life. ⁣ ⁣ I’ll never forget the first time my doctor told me about an internal pump. My brain did a major eye roll (I would never actual eye roll my amazing doctor) but my thoughts were saying, “yeah right”. I thought I would be dead before anything like that ever came out! Years passed and I kept on living my best life on my IV Remodulin.⁣ ⁣ One day I got the call, the call that gave me back freedoms that I never thought I would live to see. The implantable pump was launching, and I had the opportunity to try it! It’s been over 7 years now since I went tubeless and free from central lines or pain. My first dip in the pool was absolutely amazing! ⁣ ⁣ I have a big love for my “can of tuna”. It’s the simple things that most do not think of that make me smile. Like my long bubble baths, being able to toss and turn in bed without getting tangled or the ability to spin in the shower. I think back at life on a pump and I thank God for the experiences because now I can be truly grateful for the small AND big freedoms the implantable pump gives me! If oral treatments alone are not cutting it and your doctor suggests you try more aggressive PAH treatments like IV medicine, please do it. It sounds scary, but it can also save your life. Don’t be afraid to live a better life!⁣ #30daysofPH #implantablepump

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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4 comments

    • Jen Cueva says:

      Hi Mike, Thanks for reading. This is a story about a young woman who was switched to the implantable pump. This is our PH Awareness project and shares their stories. Yes, she is utilizing the implantable pump for her PH.

  1. DMS says:

    Love the idea of this! Is there any more news on when the implantable pump will be released by FDA. Approved but postponed, until when and why? What’s the hold up?

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