Eleanor Bird,  —

Ellie is a cat lover who lives and works in Cambridge, UK. She was diagnosed with pulmonary hypertension in 2017 at age 22, having just graduated university with an English literature degree. Now she works in higher education and dedicates her spare time to raising awareness about PH, reading books, singing and going for walks in the countryside (when not too breathless!). She also, in stereotypically English fashion, drinks a lot of tea — preferably with a slice of cake!

Articles by Eleanor Bird

Disruptive Side Effects Are a Daily Battle

I have been living with pulmonary hypertension for more than two years. When I was first diagnosed, doctors thought I was a nitric oxide responder. They told me that was good because it meant there were more medications that could potentially help me. I was put on…

Using Public Transport with an Invisible Illness

If you have a health condition, using public transport can be tricky. Personally, standing for long periods of time can be tiring. My legs ache, and as a result, I often need to sit during my commute. Unfortunately, for many people, commuting to work via public transport is a necessary…

Opening Up About My Diagnosis

One of the hardest parts for me about having a serious chronic illness is telling people about my condition. I’m always worried that they will look at me differently. And every time I inform someone new about my diagnosis, I have to relive it. Before my pulmonary hypertension (PH)…

I’m Grateful I’ve Overcome My Fear of Hospitals

I have little sympathy for those who exclaim that they don’t like hospitals — no one does! But for many of us, they are an unavoidable part of life. I can understand the inclination to avoid them at all costs, but the day might come when you no longer can.

Crafting New Dreams for My Life

This is probably the hardest column I’ve written to date. It’s about how I deal with thinking about the future. I have been a planner my entire life. Whether it was daydreaming about the color scheme of my wedding when I was a kid, creating a detailed itinerary for trips,…

Rest and PH: When My Body Talks, I Listen

When a person is diagnosed with a serious condition like pulmonary hypertension (PH), they must alter their lifestyle. One of my biggest challenges has been learning to take it easy. I like to keep busy, and I tend to get a bit glum if I lie in bed all day…

Going After Your Dream Job When You Have a Chronic Illness

Holding down a job when you have a chronic illness can be really tricky. First, there’s the time you’ll need off for appointments. Secondly, there’s the fact that you’ll need more sick days than the average Joe. This can make going after your dream job seem impossible. I was…


A Conversation With Rare Disease Advocates