Chronically Uncool – a Column by Ellie Bird

making time count, therapy

Ellie is 24 and lives just outside of London. She was diagnosed with pulmonary hypertension in 2017 at age 22, having just graduated university with an English literature degree. Now she works in comms and PR for an online learning platform. When not dedicating spare time to raising awareness about PH, she’s singing, reading books, and going for walks in the countryside (when not too breathless!). She also, in stereotypically English fashion, drinks a lot of tea — preferably with a slice of cake!

Finding Love with a Chronic Illness

I’ve written in previous columns about the difficulties I’ve experienced while navigating romantic relationships with a chronic illness. This week, I wanted to write positively about finding love with pulmonary hypertension (PH), and some of the little things…

Dealing with the Fear of Losing Independence

One of the hardest things about the diagnosis of a progressive illness is grappling with how your disease will affect your future independence. It can be scary and painful to think about how, as your disease progresses, you will become more and more reliant on other…

Disruptive Side Effects Are a Daily Battle

I have been living with pulmonary hypertension for more than two years. When I was first diagnosed, doctors thought I was a nitric oxide responder. They told me that was good because it meant there were more medications that could potentially help me. I was put on…

Using Public Transport with an Invisible Illness

If you have a health condition, using public transport can be tricky. Personally, standing for long periods of time can be tiring. My legs ache, and as a result, I often need to sit during my commute. Unfortunately, for many people, commuting to work via public transport is a necessary…

Opening Up About My Diagnosis

One of the hardest parts for me about having a serious chronic illness is telling people about my condition. I’m always worried that they will look at me differently. And every time I inform someone new about my diagnosis, I have to relive it. Before my pulmonary hypertension (PH)…