My family has grieved the passing of many people over the years. Some died peacefully from natural causes, too many were taken by pulmonary hypertension (PH) and other diseases, and a few left this world both suddenly and tragically. Ages have ranged from the very young to the very…
In 2008, my then 8-year-old son, Cullen, was diagnosed with pulmonary arterial hypertension (PAH) following a right heart catheterization procedure. I spent much of that night researching, taking notes, and writing questions and concerns about this rare and incurable disease, which I’d never heard of until that day. The…
Answer: resilience. Randolph Reynolds is geared up and ready to fly an F-105 in 1978. (Courtesy of Randolph Reynolds) Randolph Reynolds, 81, had an amazing career as a jet fighter and instructor pilot in the United States Air Force, flying magnificent aircraft like the F-105 Thunderchief and F-4D Phantom…
My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). Like it or not, his health and treatments became a common topic of conversation with family and friends. Although not ordinarily superstitious, we became cautious about reacting too excitedly when asked if his PH treatments…
PH parents are busy people. Making time for each other isn’t easy, and neither is trusting someone to care for their medically frail child when they do. My husband, Brian, and I have been married for 27 years, and we raised two sons, Aidan, 21, and Cullen, 22. Cullen was…
For all of you Ms. and Mr. Hospital Corners out there, I see you! No, I don’t see or care how you made your bed today, but I do care about how you’re holding up as caregivers. Due to rapid decline from pulmonary hypertension (PH), my son Cullen…
I know what I’m about to say will make some of you roll your eyes, but it’s so important. Drink water every day! I’m reminding you because a scary dehydration event recently reminded me. Last Wednesday, my dog woke me at 5:30 in the morning. Standing next to my…
My son Cullen is 22, and I’ve been his primary advocate and caregiver for 14 of those years. I’ve seen him through pulmonary hypertension (PH) and heart and double-lung transplant recovery, and I continue to support him as he approaches eight years post-transplant next month. You would think…
My son Cullen was 8 when he was diagnosed with severe pulmonary hypertension (PH). His cardiologist in Washington state placed Cullen on Tracleer (bosentan) and Revatio (sildenafil). He also referred us to a PH specialist at Lucile Packard Children’s Hospital at Stanford (LPCH), in California. The PH…
On this day in 1880, a healthy baby girl named Helen Keller was born. When Helen was 19 months old, a febrile illness with no known cause struck her. Historical biographies speculate she had rubella, scarlet fever, encephalitis, or meningitis. Whatever the illness, it left Helen blind and deaf, and…
Experience has taught my husband, Brian, and me that life is what you make it, but you don’t always get to choose the ingredients. We have put a lot of love and other wonderful things into raising our sons Cullen, 22, and Aidan, 21. Pulmonary hypertension (PH) wasn’t…
As a co-moderator for the Pulmonary Hypertension News Forums, I’ve encouraged and taken part in many hot topics over the past three years. During that time, I’ve noticed one topic resurfaces often, and it always triggers great responses. Mental health and wellness spur a conversation that pulmonary…
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