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Not too long ago, I met someone and opened up to them about my pulmonary hypertension diagnosis. They listened and thanked me for sharing my experience. Later that week, they sent me a message saying they had researched my condition and wondered if I…

It’s been a long, difficult year, so let’s make up for it with over-the-top Christmas cheer. We should decorate our homes from floor to ceiling, and ground to rooftop. Bake, cook, watch holiday movies, listen to carols, buy lots of gifts, wrap them up, display them under the tree, open…

I’m no stranger to the “high-risk” label. While living with congenital heart disease and pulmonary hypertension, I hear these words often. In the past few years, the members of my medical team have mentioned my risk while deciding on the best surgical or treatment plan, weighing the pros and…

Life with pulmonary hypertension was far from picture perfect, but I always took snapshots anyway. No filters, just life the way my own eyes had seen it. I captured reality from all angles: the pleasant and the painful, the boring and the extraordinary, the successful and the disappointing, the predictable…

Since being diagnosed with pulmonary hypertension in 2017, I have had a complicated relationship with exercise. I have been quite erratic in my approach to staying active. At times, I’ve followed a strict routine of working out every…

Are you a pulmonary hypertension (PH) caregiver? If so, then November has been your special month. Thanksgiving is celebrated this week in the U.S., and all month there has been a focus on PH awareness and on many of you. That’s right — on many of you — because…

Sometimes life refuses to go according to plan. Having pulmonary hypertension (PH) and coexisting illnesses only adds to this. Not that we needed to throw our lives off-balance any more, but it happened. I now have COVID-19. I’ve had symptoms for over a week. The challenge for me, and likely…

Adulting is hard. As children, we look forward to the freedom to make our own decisions, but being responsible for ourselves isn’t always as satisfying as we thought it would be. Even those blessed with a supportive family and friends are still affected by the choices they make. There are…

“When given the choice between being right and being kind, choose kind.” – Dr. Wayne W. Dyer My life has been very uncertain lately. There are days when things seem to fall apart, then get put back together, and then fall apart all over again. I am dizzy from the…

“Without you, there would be no me. I am everything reflected in your eyes. I am everything approved by your smile. I am everything born of your guidance. I am me only because of you.” – Richelle E. Goodrich, “Making Wishes: Quotes, Thoughts, & a…

There are times in life when I believe it is necessary to sit on the fence between optimism and pessimism. A pulmonary hypertension (PH) diagnosis and the battle that follows is one of those situations. My husband, Brian, recently put a creative spin on this perspective when he participated…

“So far, you’ve survived 100% of your worst days.” I have questioned my strength during so many moments in my life — moments that left me feeling tired, defeated, and hopeless. I questioned how much physical and emotional pain I could handle. During these times, my mind and body tested…