Columns

There are times in life when I believe it is necessary to sit on the fence between optimism and pessimism. A pulmonary hypertension (PH) diagnosis and the battle that follows is one of those situations. My husband, Brian, recently put a creative spin on this perspective when he participated…

“So far, you’ve survived 100% of your worst days.” I have questioned my strength during so many moments in my life — moments that left me feeling tired, defeated, and hopeless. I questioned how much physical and emotional pain I could handle. During these times, my mind and body tested…

One difficult aspect of the pandemic and all of the necessary restrictions that have been put in place is the feeling that our time is being wasted. Young people, and likely the elderly, too, especially worry about this. Some might say, “I don’t want to waste my 20s…

November is a special month for many. It is a time to gather with friends and family, and share a meal, memories, current events, and hope for the future. Now is the season for reflecting on our lives and being mindful of what we have to be thankful for. Feeling…

“You is kind. You is smart. You is important.” These words are from Kathryn Stockett’s book “The Help.” The maid, Aibileen, repeats this to the little girl, Mae Mobley, to remind her of her worth. As I read this part of the book, I couldn’t help but long for…

Growing up, Moma would bring Halloween-themed treats to my class on my birthday. Pumpkin-themed goodies and plastic spider rings were among the items she included in each bag. Hyperactive kids bounced around, filling up on all of those sugary gifts. Watching others being happy has always filled my heart. Happy…

Second in a series. Read part one. In last week’s column, I shared the inspirational story of Cassidy Huff. Cassidy and my son Cullen became friends through the Make-A-Wish Foundation 12 years ago. When they met, Cullen had been recently diagnosed with pulmonary hypertension (PH). Cassidy has…

After dealing with a pandemic for more than eight months, many in my area are growing restless. I can’t say I haven’t felt the same way at times. But what I find most disturbing is when people pretend that nothing has happened. Hello! We’re still in a pandemic, y’all. On…

Before my pulmonary hypertension (PH) diagnosis, I’d never had therapy or counseling — though perhaps I could have used it. Over the past three years, I’ve constantly toyed with the idea.  I’ve always been good at putting on a…

First in a series. Those in the pulmonary hypertension (PH) community often refer to each other as PHamily. They don’t live under the same roof, but they do have a strong understanding of what life is like for other patients and caregivers: endless doctor appointments, hospitalizations, procedures, and surgeries. Their…

I’m lying on a frigid and tiny table that appears to have shrunk since last time. The technician tells me the MRI will take about half an hour. Thankfully, she locates me a nice, warm blanket. I am already freezing and shivering. Finally, my body moves slowly but surely…

A few years ago, if someone asked me to describe what self-care meant, images of long baths and DIY face masks would have sprung to mind. But since my diagnosis of pulmonary hypertension (PH), my understanding of self-care has changed dramatically. For those with chronic illnesses,…