“This is humiliating,” I said to the security agent waiting for his colleague to arrive to run a test on my portable oxygen concentrator. The agent asked if I wanted to continue the screening in a private room. Unsure of how many people might be looking in my direction, I…
PHighting Words - a Column by Mike Naple
Before my diagnosis, pulmonary hypertension (PH) was a mystery to me. I’d never met anybody who had the disease. Sometimes finding another person with PH is just as rare as the progressive disease itself. That’s exactly why I went to Atlanta last month to attend the International…
I’ve come out a few times in my life. I came out regarding my sexuality as a member of the LGBTQ community. I’ve also come out as a disabled and chronically ill individual and a member of the pulmonary hypertension (PH) community. Coming out is a deeply personal experience.
When somebody asked me how I was feeling a few weeks ago, I responded, “Well, I feel like Stretch Armstrong being pulled in too many directions.” Do you remember the action figure toy Stretch Armstrong? You might need to stretch your memory back to your childhood to visualize this…
I often remark that being diagnosed with pulmonary hypertension is like walking into a “PHun house.” Open the door, and everything you’ll see in the mirrors will appear distorted, out of proportion, unfamiliar, and scary. Strange and uncomfortable things are happening inside our bodies that cause shortness of breath, fatigue,…
There’s a scene in Disney’s classic animated film “Aladdin” in which the evil sorcerer Jafar transforms into a snake and squeezes Aladdin within an inch of his life. As a kid, I found this scene rather frightening. As an adult living with a serious chronic illness and respiratory disease, I…
The hallway felt cold despite the extra blanket the transfer specialist gave me before moving me in my hospital bed. We headed to another wing of the building for yet another test. I waited in a dimly lit hallway for 45 minutes or so, counting the minutes, hours, and days…
“I wish I could help you. I know how tough pulmonary hypertension is and what you’re going through — there just isn’t enough supply of the antibodies treatment.” That was the gist of what a doctor told me while I was isolating in a California hotel room in January. I…
When I checked into urgent care in 2016, I was supposed to be preparing a member of Congress for a summit at the White House. But instead of going to work the next day, I sat in the hospital for nearly two weeks and left with a pulmonary hypertension diagnosis.
The pandemic has been especially hard on people with disabilities, chronic illness, and rare diseases. Our community has faced ongoing ableist attitudes toward safety measures and protocols meant to keep disabled, immunocompromised, and other high-risk individuals protected from a pandemic with a death toll in the United States…
It turns out that National Cat Herders Day is an occasion people celebrate. Observed on Dec. 15, it’s a day to recognize people who achieve the impossible as part of their jobs or positions, and do work that requires incredible feats of willpower and organization, and a…
The tightness creeps up in my lungs just as I’m about to make up the bed with a second clean sheet. I pause to catch my breath and wonder how unfolding a piece of fabric can make me feel like I just sprinted up a flight of stairs.
