Worth the PHight - a Column by Jen Cueva

workplace, fear, interview, less is more, unique, covid-19

Jen is a columnist and forum moderator for Pulmonary Hypertension News Today. Jen worked in nursing before the script changed upon her diagnosis of PH in 2005. Advocating and meeting those with PH has always been an essential part of her life. Her passion is to instill hope and remind others in the PH community that they are not alone.

In her weekly column, she delves into the roller coaster of emotions that come along with PH. Having this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey is meaningful and powerful for her. Jen lives in Southern California with her husband. Together, we PHight stronger.

How Our Family’s COVID-19 Illnesses Have Been Going

Sometimes life refuses to go according to plan. Having pulmonary hypertension (PH) and coexisting illnesses only adds to this. Not that we needed to throw our lives off-balance any more, but it happened. I now have COVID-19. I’ve had symptoms for over a week. The challenge for me, and likely…

Moma and Me: We’re in This PHight Together

“Without you, there would be no me. I am everything reflected in your eyes. I am everything approved by your smile. I am everything born of your guidance. I am me only because of you.” – Richelle E. Goodrich, “Making Wishes: Quotes, Thoughts, & a…

How a Traumatizing Birthday 3 Years Ago Inspires Joy for Today

Growing up, Moma would bring Halloween-themed treats to my class on my birthday. Pumpkin-themed goodies and plastic spider rings were among the items she included in each bag. Hyperactive kids bounced around, filling up on all of those sugary gifts. Watching others being happy has always filled my heart. Happy…

As the Holidays Approach, It’s OK to Say No

After dealing with a pandemic for more than eight months, many in my area are growing restless. I can’t say I haven’t felt the same way at times. But what I find most disturbing is when people pretend that nothing has happened. Hello! We’re still in a pandemic, y’all. On…

Feeling Frustrated With Myself During a Simple MRI

I’m lying on a frigid and tiny table that appears to have shrunk since last time. The technician tells me the MRI will take about half an hour. Thankfully, she locates me a nice, warm blanket. I am already freezing and shivering. Finally, my body moves slowly but surely…


A Conversation With Rare Disease Advocates