Jen is a columnist and forum moderator for Pulmonary Hypertension News Today. Jen worked in nursing before the script changed upon her diagnosis of PH in 2005. Advocating and meeting those with PH has always been an essential part of her life. Her passion is to instill hope and remind others in the PH community that they are not alone.
In her weekly column, she delves into the roller coaster of emotions that come along with PH. Having this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey is meaningful and powerful for her. Jen lives in Southern California with her husband. Together, we PHight stronger.
I’ll never forget the day I knew something was wrong with my body. It was sending me warnings. The symptoms included increased shortness of breath from minor activities like talking, presyncope, which is the sensation of nearly fainting, heart palpitations, and swelling in my abdomen and lower extremities. I…
When I walk my dog around my new neighborhood carrying my oxygen, my neighbors seem to look at me like I’m an alien. Many stare and gawk, as if they’re speculating about what my invisible illness might be, since I otherwise appear to be a healthy…
As another year comes to an end, I reflect on memories from 2021. Since my pulmonary hypertension (PH) diagnosis, I desire reflection more each year. Those of us with rare diseases often get caught up in the mundane moments of being a patient. Whether this means taking handfuls of medications…
“Seeing is believing, but sometimes the most real things in the world are the things we can’t see.” ― Chris Van Allsburg, “The Polar Express” When I was young, my parents worked diligently to create a sense of wonder during the holidays. My sisters and I participated in church,…
Last week, one of my morning devotionals left me in deep thought for most of the day. It was about apologizing for everything that makes you the one-of-a-kind person you are. With both hands held high, I admit I’m guilty. Are you guilty of this, too? I’m sorry I missed…
“Don’t be afraid to give up the good to go for the great.” — John D. Rockefeller Recently, my husband, Manny, and I made a big life decision by selling our home in Texas and relocating to San Diego. This was always our dream, but we never thought it…
Living with pulmonary hypertension (PH) is a constant challenge. If I’m not educating myself, I’m educating my family and friends, and at times, even my medical team. Yes, the members of my medical team are experts in medicine, but I am the expert of my own body. Recently, I…
Some days, as I catch a glimpse of the woman in the mirror, I find the reflection unrecognizable. The dark, weary circles around the eyes, the protruding cheek and collarbones, the pale, bluish skin — that’s me. This can leave me startled and discontented, with tears running down my face.
What happens when one still suffers from COVID-19-related symptoms long after infection? Unfortunately, I am one of those people. My medical team is comprised of multiple specialists, along with my primary care doctor. Most of this team is clueless about the long-term effects of the virus, cringing as we…
Hey, y’all, I’m Jen. I love people. I enjoy talking, writing, and cooking. Coffee shops and food are my jam. I admire my family and friends. Listening to live music or being near the water helps keep me balanced. But pulmonary hypertension (PH) will creep up when least expected, attempting…
Do you struggle to create boundaries to protect your health? Do others say that you are using your chronic illness as an excuse? If so, you are not alone. Learning to say no and creating boundaries have always been a struggle for me. But after being diagnosed with pulmonary hypertension…
Something about sunshine boosts my mood. Do you find that to be true, too? For me, warmer months bring to mind fun memories of childhood traditions. When I was growing up, my family had a camp on the water. Family picnics, and beach and boat outings are some of my…
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