Life After PH – A Column By Kathleen Sheffer

May 23, 2018May 22, 2018

My Dog Has Supported Me Through My PH Journey and Post Transplant

Columns, Life After PH – A Column By Kathleen Sheffer

As a freelance photographer, I spend most of my working hours at home alone, editing photographs on my computer. Most of my photo shoots are scheduled in the ... Read more

May 2, 2018May 1, 2018

Staying Healthy While Traveling with Transplanted Organs

Columns, Life After PH – A Column By Kathleen Sheffer

For the first couple months of my recovery from a heart-lung transplant, I had a one-hour radius from the hospital. A woman I met in a waiting room assured ... Read more

April 18, 2018April 17, 2018

A Legacy that Reminds Us of the Importance of Organ Donation

Columns, Life After PH – A Column By Kathleen Sheffer

April is National Donate Life Month, a chance to celebrate those who have saved lives through organ donation. Not everyone can be an organ donor — most people won’t ... Read more

April 4, 2018April 3, 2018

The Bucket List I Refuse to Make

Columns, Life After PH – A Column By Kathleen Sheffer

During my senior year of high school, a teacher assigned the task of creating a “bucket list.” I was furious. A term popularized by the 2007 movie of the ... Read more

March 28, 2018March 27, 2018

Camille Frede Receives a Long-awaited Heart-lung Transplant

Columns, Life After PH – A Column By Kathleen Sheffer

On Sunday, one of my longest friends with pulmonary hypertension received a heart-lung transplant. I met Camille at the first PH Conference I attended in 2000. I was 6 ... Read more

March 14, 2018March 13, 2018

My Sister: Fierce Competitor and Battle Buddy

Columns, Life After PH – A Column By Kathleen Sheffer

My sister and I fell asleep in our flannel nightgowns as my mom drove our minivan the 14 winding miles home. Dad was on a work trip, and we’d ... Read more

March 7, 2018March 9, 2018

I Am a PH Patient Without PH

Columns, Life After PH – A Column By Kathleen Sheffer

When asked to help launch the Pulmonary Hypertension News Forums, I was honored, excited … and I felt like a fraud. “I don’t even have PH, anymore!” I ... Read more

February 28, 2018February 27, 2018

Pulmonary Hypertension News Forums Launch Today

Columns, Life After PH – A Column By Kathleen Sheffer

I’ve written before about the importance of community while battling chronic illness, especially rare diseases. The advice and support I’ve received from other patients through online groups and in-person ... Read more

February 21, 2018February 21, 2018

Three Ways Transplant Enriches My Life

Columns, Life After PH – A Column By Kathleen Sheffer

Receiving a transplant is more than the gift of life; it’s the gift of a rich life. Living with a transplant is not easy. Though I have fully functioning ... Read more

February 14, 2018February 13, 2018

Valentine’s Day, with a Hearty Dose of Humor

Columns, Life After PH – A Column By Kathleen Sheffer

It didn’t get old. I was still very much amused the third time I deposited a stack of postcards emblazoned with an illustration of the heart pulled from my ... Read more

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