Life After PH – A Column By Kathleen Sheffer

January 2, 2019December 20, 2018

2018: My Year in Review

Columns, Life After PH – A Column By Kathleen Sheffer

2018 was triumphant. I accomplished several of my long-term goals. I had zero organ rejection, so I remained on my lowest dose of prednisone all year, and that meant ... Read more

December 12, 2018December 21, 2018

Echocardiograms Are an Emotional Experience After PH and CHD

Columns, Life After PH – A Column By Kathleen Sheffer

Last week I went in for a cardiac ultrasound (I call this exam an echo). I’ve probably had hundreds of them in my life, but since my heart-lung transplant, ... Read more

November 14, 2018November 20, 2018

My Recent CPAP Use Has Triggered Traumatic Memories

Columns, Life After PH – A Column By Kathleen Sheffer

For 16 years I slept with supplemental oxygen delivered through a nasal cannula. Prone to desaturation at night, I blasted two liters of concentrated oxygen through my nose every ... Read more

October 31, 2018November 8, 2018

Challenges and Insecurities While Working with PH and Transplant

Columns, Life After PH – A Column By Kathleen Sheffer

Lately, I’ve been so busy with my freelance photography business that I haven’t had time to put thought into a new column. I suppose that means it’s time to ... Read more

October 3, 2018October 8, 2018

September Brought Grief and Heavy Hearts

Columns, Life After PH – A Column By Kathleen Sheffer

Claire Wineland’s death on Sept. 2 set the tone for the month. Great losses in my communities clouded September. Claire suffered a stroke after a double-lung transplant. She was ... Read more

August 29, 2018August 28, 2018

Lessons on Persistence from the Desert

Columns, Life After PH – A Column By Kathleen Sheffer

I love the desert. No, this is not a timely column post about Burning Man. Sorry to disappoint. I’ve really only been to the desert twice. The general inconvenience ... Read more

August 22, 2018August 21, 2018

The Transplant Games of America Gave Me Hope for My Future

Columns, Life After PH – A Column By Kathleen Sheffer

Attending the Transplant Games of America in Salt Lake City earlier this month was the best gift I’ve ever given myself. As discussed in previous posts, I have met many ... Read more

August 8, 2018August 6, 2018

Grief and Gratitude at the Transplant Games

Columns, Life After PH – A Column By Kathleen Sheffer

I don’t know how to begin to explain the experience of being at the Donate Life Transplant Games of America. It’s been all I’d dreamed of, and so, so ... Read more

August 1, 2018July 30, 2018

My PH Past Makes Healthy Competition Something to Be Savored

Columns, Life After PH – A Column By Kathleen Sheffer

One thing that I have looked forward to throughout my transplant journey is the Transplant Games. I was fortunate to learn about the Donate Life Transplant Games of America ... Read more

July 18, 2018July 23, 2018

Why I Cried at the Pulmonary Hypertension Association Conference

Columns, Life After PH – A Column By Kathleen Sheffer

Last week, I reflected on attending the Pulmonary Hypertension Association 2018 International PH Conference and Scientific Sessions for the first time since my heart-lung transplant. Click here to read that post. ... Read more

Pin It on Pinterest