Life After PH – A Column By Kathleen Sheffer

August 29, 2018August 28, 2018

Lessons on Persistence from the Desert

Columns, Life After PH – A Column By Kathleen Sheffer

I love the desert. No, this is not a timely column post about Burning Man. Sorry to disappoint. I’ve really only been to the desert twice. The general inconvenience ... Read more

August 22, 2018August 21, 2018

The Transplant Games of America Gave Me Hope for My Future

Columns, Life After PH – A Column By Kathleen Sheffer

Attending the Transplant Games of America in Salt Lake City earlier this month was the best gift I’ve ever given myself. As discussed in previous posts, I have met many ... Read more

August 8, 2018August 6, 2018

Grief and Gratitude at the Transplant Games

Columns, Life After PH – A Column By Kathleen Sheffer

I don’t know how to begin to explain the experience of being at the Donate Life Transplant Games of America. It’s been all I’d dreamed of, and so, so ... Read more

August 1, 2018July 30, 2018

My PH Past Makes Healthy Competition Something to Be Savored

Columns, Life After PH – A Column By Kathleen Sheffer

One thing that I have looked forward to throughout my transplant journey is the Transplant Games. I was fortunate to learn about the Donate Life Transplant Games of America ... Read more

July 18, 2018July 23, 2018

Why I Cried at the Pulmonary Hypertension Association Conference

Columns, Life After PH – A Column By Kathleen Sheffer

Last week, I reflected on attending the Pulmonary Hypertension Association 2018 International PH Conference and Scientific Sessions for the first time since my heart-lung transplant. Click here to read that post. ... Read more

July 11, 2018July 13, 2018

Reflections After the PH Association’s 2018 Conference

Columns, Life After PH – A Column By Kathleen Sheffer

At the end of June, I was honored to photograph the Pulmonary Hypertension Association 2018 International PH Conference and Scientific Sessions in Orlando, Florida. This was the ninth PH ... Read more

June 27, 2018July 3, 2018

Living Without PAH: A Room-By-Room Analysis of What I Take for Granted

Columns, Life After PH – A Column By Kathleen Sheffer

A heart-lung transplant cured my pulmonary arterial hypertension (PAH) and changed the way I interact with my environment. It affected the activities I perform in every room in my ... Read more

June 20, 2018June 19, 2018

In Defense of Transplant, Part III: Timing the Listing

Columns, Life After PH – A Column By Kathleen Sheffer

Third in a series. Read part one and part two. As I wrote last week, transplant is the only treatment for end-stage pulmonary hypertension (PH). You don’t have end-stage ... Read more

June 13, 2018June 18, 2018

In Defense of Transplant, Part II: Measuring Survival Rates

Columns, Life After PH – A Column By Kathleen Sheffer

Second in a series. Read part one. I’ll be the first to admit that I did not want a transplant. Even when I was dying, I didn’t want a ... Read more

June 6, 2018June 5, 2018

In Defense of Transplant: Part I

Columns, Life After PH – A Column By Kathleen Sheffer

First in a series. Lung transplantation has an image problem. People often refer to transplant as the “last resort” or a “backup plan,” terms that connote failure. I’m no public ... Read more

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