Pulmonary Hypertension News Forums Forums Our Community Weekly Wins How is your week going?

  • How is your week going?

    Posted by Colleen Steele on May 8, 2025 at 10:03 pm

    I have been negligent in checking in on our weekly wins. How is everyone doing? Do you have any wins from the past few weeks that you would like to share?

    This week, I have been on a rollercoaster ride, but for the most part, I enjoyed it! Monday was “World PH Day” and I spent it at the hospital with Cullen. It was a routine heart transplant appointment with typical tests such as labs and ECHO. Knock on wood, he continues to be well, and his medical team is happy. I am forever grateful to his organ donor but I will never forget that PH was the reason Cullen needed a transplant.

    For our new members who don’t know, my husband passed away 2 years ago and Tuesday was our 30th wedding anniversary. That was an emotional day but the wins were the little signs I felt Brian was sending me to let me know he is still with me.

    Cullen is celebrating another big win this week. He has completed his Junior year of college. I help clear his dorm out tomorrow and bring him home for the summer. My heart is so happy for him!

    jen-cueva replied 23 hours, 28 minutes ago 2 Members · 1 Reply
  • 1 Reply
  • jen-cueva

    Member
    May 13, 2025 at 7:03 pm

    Hi, @Colleen , like minds- as I was about to post a weekly check-in! Again, I can’t tell you how much I’ve appreciated you caring for everyone here as my hand/wrist heals. I’m thrilled to be back with you all and without a cast!

    Congrats on the positive appointments for Cullen last week! I hope and pray that he continues to be stable. But also a huge round of applause as he is already done with his Junior year at college! Time flies- although I know Cullen may disagree! Having him home all summer will be nice and also a big help! Do you or he have any plans for the summer?

    Yes, you recently hit the 2-year mark without Brian, and having such a big anniversary around the same time must have been difficult for you. Keeping you close in my heart and prayers, my dear PHriend!

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