Updates
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Rare Variants of ABCC8 Gene Identified in Spanish PAH Patients
Rare variants of the ABCC8 gene were found among pulmonary arterial hypertension (PAH) patients in Spain, a study reports. The variants, or mutations, are ... Read more -
I’m Learning to Replace Comparisons With Reflection
I can’t count the number of times I’ve heard U.S. President Theodore Roosevelt’s assertion that “comparison is the thief of joy.” Although I’ve tried ... Read more -
New Virtual Tool May Allow Fast, Accurate PH Diagnosis During COVID-19, Study Says
A new virtual tool, called VEST, is aiding clinicians in remotely diagnosing people with Group 1 pulmonary hypertension (PH) per the World Health Organization ... Read more -
Overcoming My Fear of Being Judged
A while back, I posted in the PH News Forums about my fear of judgment. I wrote about living with PH and feeling like ... Read more -
Moderna, Chiesi Will Collaborate on New RNA-based Therapies for PAH
Moderna has entered a collaboration agreement with Chiesi Farmaceutici to develop new messenger RNA-based therapies for pulmonary arterial hypertension (PAH). Messenger RNAs (mRNAs) are ... Read more
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more