Data from PHAROS Trial Reveals Danger of Poorer Outcomes for Scleroderma Patients At-Risk of PH
Patients with systemic sclerosis (SSc) at risk of having pulmonary hypertension (PH) also have similar risk factors for a poorer ... Read more
Updates
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Thanks to PH, I’ve Lost and Gained Pieces of Myself
I previously defined myself by the things that consumed the majority of my time. In high school, I was a student-athlete. I used most ... Read more -
Bellerophon’s Clinical Trials for INOpulse PH Therapies Moving Forward
Bellerophon Therapeutics has announced positive data from its Phase 3 clinical trial investigating INOpulse in patients with pulmonary arterial hypertension (PAH), as well as the ... Read more -
Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison for securities and wire ... Read more -
Researchers Identify Potential Therapeutic Targets for PH Associated with Heart Failure
A new study identified two potential therapeutic targets for pulmonary hypertension (PH) associated with heart failure. The two related enzymes, named ROCK1 and ROCK2, ... Read more
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What They Didn’t Tell Me in Discharge Instructions After Surgery
Last week, I was discharged from the hospital four days after surgery. During my ... -
Long-term Benefits of Ralinepag for PAH Patients Shown in Interim Data from Phase 2 Extension Trial
Long-term use of ralinepag, an investigational therapy being developed by Arena Pharmaceuticals, can promote positive changes ... -
September Brought Grief and Heavy Hearts
Claire Wineland’s death on Sept. 2 set the tone for the month. Great losses ... -
Inspiratory Muscle Weakness Aggravates Shortness of Breath in CTEPH Patients, Study Shows
Inspiratory muscle weakness aggravates shortness of breath caused by exertion and lung function capacity ... -
Drinking Nitrate-Rich Beetroot Juice May Improve NO Levels in PAH Patients, Small Trial Shows
Drinking nitrate-rich beetroot juice can improve the production of nitric oxide in patients with ... -
In Memory of Serena Lawrence, Who Inspired Voices of the Hurting and Sick
Wednesday’s evening air was heavy. It was as if Atlas kneeled and tugged the ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more