Updates

May 22, 2019May 22, 2019
Balloon Pulmonary Angioplasty Reduces Sleep Apnea in Patients with CTEPH, Study Shows

Balloon pulmonary angioplasty reduces sleep apnea in chronic thromboembolic pulmonary hypertension (CTEPH) patients, according to a study. The observed improvements further correlated ... Read more
May 20, 2019May 20, 2019
Resverlogix Announces Promising Findings on Apabetalone, Will Launch Phase 2 Trial in PAH Patients

Promising preclinical findings recently published in a peer-reviewed journal opened the door to the launch of a Phase 2 trial testing the therapeutic potential ... Read more
May 16, 2019May 16, 2019
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose ... Read more
May 15, 2019May 15, 2019
Clinical Development of INOpulse for PH Continues to Move Forward, Bellerophon Reports

Bellerophon released an update on the latest data regarding its INOpulse therapy, and announced its plans to apply for the therapy’s approval as a treatment ... Read more
May 13, 2019May 13, 2019
Balloon Pulmonary Angioplasty Can Improve Survival of Patients with Inoperable CTEPH, Study Suggests

Survival rates of patients with chronic thromboembolic pulmonary hypertension (CTEPH) unable to undergo surgical treatment have significantly improved in recent years, a retrospective ... Read more

Columns, Recharged and Rewired - a Column by Brittany Foster

Pain Makes Me Lose the ‘Real Me’ and I Don’t Like the Person I Become
May 10, 2019May 8, 2019
My pain levels vary. Some days I feel “OK,” and I can go outside ...
News, PH News

Mallinckrodt’s INOmax Improves Oxygenation of Newborns with PH, Interim Study Analysis Shows
May 9, 2019May 9, 2019
INOmax (nitric oxide) gas improved the oxygenation of premature, term, and near-term newborns with pulmonary ...
News

Herbal Compound Silibinin Eases Early Signs of PAH in Rats, Study Shows
May 8, 2019May 8, 2019
A natural component of milk thistle seeds called silibinin can lessen some early signs ...
News, PAH News

Teva Launches Generic Version of PAH Therapy Letairis in US
May 6, 2019May 6, 2019
Teva Pharmaceutical Industries launched a generic version of Letairis (ambrisentan) in the United States ...
Columns, Recharged and Rewired - a Column by Brittany Foster

The Waiting Is the Hardest Part: Anticipation Heightens My Anxiety
May 3, 2019May 2, 2019
When I was younger, I was always “waiting” for something to happen. I can ...
PH News

PALS Uplifts the Spirits of Rare-Disease Patients by Offering Free Flights
May 3, 2019May 3, 2019
Cumbersome security procedures, rising airfares, and shrinking legroom have made commercial air travel difficult ...

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Beraprost Therapy May Improve Lung and Heart Function in PH Patients, Study Says
May 3, 2019May 17, 2019
Oral beraprost, in combination with standard therapy, may help decrease pulmonary arterial pressure, and improve ...
FDA Approves Abbreviated New Drug Application for Cipla’s Ambrisentan Generic Tablets for PAH Treatment
May 2, 2019May 16, 2019
The U.S. Food and Drug Administration (FDA) has approved the abbreviated new drug application ...
Low-dose Whole Body Irradiation May Reverse the Development of PH, Mouse Study Suggests
May 1, 2019May 15, 2019
Poor Heart Function Raises Risk of Early Death After Lung Transplant for IPAH Patients, Study Suggests
April 29, 2019April 30, 2019
I Will Not Apologize for Advocating for My Health
April 26, 2019April 30, 2019
Oxygenation Improves Sooner with iNO Therapy in PH Newborns, Registry Study Finds
April 26, 2019April 26, 2019

Women with PAH-CHD at High Risk of Serious Complications During Pregnancy, Study Warns
April 25, 2019
Women with pulmonary arterial hypertension (PAH) secondary to congenital heart disease (PAH-CHD) are at ...
Nonprofit Group Works to Raise Rare Disease Awareness in India
April 25, 2019April 25, 2019
NT-proBNP Levels Can Predict Long-term Outcomes and Treatment Response in PAH Patients, Study Says
April 24, 2019April 24, 2019
Survival Rates for Lung Disease-associated PH Similar to Poor Survival in IPH, Study Suggests
April 22, 2019April 22, 2019

Heart’s Ventricular Mass on MRI May Predict Risk of Death in PAH, Study Says
April 18, 2019April 18, 2019
The heart’s ventricular mass may be an early prognostic biomarker for predicting the risk ...
Team PHenomenal Hope Gears Up for 6th Annual 5K Fundraiser
April 17, 2019April 17, 2019
PH Patients in UK Experience Diagnosis Delay, Heavy Disease Burden, Survey Says
April 15, 2019April 15, 2019

News

10 Exercise Myths and Truths: Advice from a Respiratory Specialist
April 12, 2019
Myth 1: If you can’t run with the big dogs, stay on the porch. ...
Columns, Recharged and Rewired - a Column by Brittany Foster

The ‘Pains’ of Being in Severe Pain
April 12, 2019April 10, 2019
“Rate your pain on a scale of 1 to 10, 10 being the worst ...
News, PH News

Mallinckrodt’s INOmax Approved in Australia for Adults with Perioperative PH and Heart Surgery
April 12, 2019April 12, 2019
The health regulatory agency for Australia has approved Mallinckrodt Pharmaceuticals‘ INOmax (nitric oxide) gas for inhalation as ...
News, PAH News

United Therapeutics Ends Clinical Development of Esuberaprost as Add-on Therapy for PAH
April 11, 2019April 11, 2019
United Therapeutics announced it has ended its Phase 3 BEAT trial testing esuberaprost as an ...
News

FDA Agrees to Change Study of Bellerophon’s INOpulse for PH-ILD Patients
April 10, 2019
The U.S. Food and Drug Administration (FDA) has agreed to change the ongoing Phase 2b study evaluating INOpulse ...
Columns, Life After PH – A Column By Kathleen Sheffer

Normal Lung Pressure Adds Pressure to Live to the Fullest
April 10, 2019April 9, 2019
My anxiety skyrocketed last month without any medical triggers. I celebrate my 26th birthday ...
News, PH News

Vasodilator Combo Can Treat PH-associated POEMS Syndrome, Report Says
April 8, 2019April 18, 2019
Combined therapy with Revatio (sildenafil) and Opsumit (macitentan) was effective in a patient diagnosed with ...
News, PAH News, PH News

LRP1 Protein Levels Linked to Blood Vessel Remodeling in PH, Study Suggests
April 5, 2019April 5, 2019
Increased levels of a protein called LRP1 may lead to blood vessel remodeling in ...
News, PAH News

Systemic Hypertension a Predictor of PAH in Lupus Patients, Retrospective Study Finds
April 4, 2019April 18, 2019
Systemic hypertension is an independent predictor in rare cases of pulmonary arterial hypertension (PAH) ...
News, PAH News

Researchers ID Genetic Factor That Predisposes Carriers of Specific Mutation to Familial PAH
April 3, 2019April 3, 2019
Variations in a gene called FIGN predispose to familial or heritable pulmonary arterial hypertension (FPAH) in ...
News, PAH News

Increased Production of Nestin Protein Involved in PAH Development, Study Suggests
April 1, 2019April 1, 2019
Increased production of a protein called Nestin by cells lining the blood vessels in ...
Columns, Recharged and Rewired - a Column by Brittany Foster

Please Don’t Tell Me ‘It Could Be Worse’
March 29, 2019March 27, 2019
“It could be worse.” It’s amazing how quickly these four words make my head ...
News, PH News

Certain Patients with Sarcoidosis-associated PH May Benefit from PH-specific Treatment, Real-world Study Suggests
March 29, 2019March 29, 2019
Patients with sarcoidosis-associated pulmonary hypertension (SAPH) can improve their levels of a key biomarker ...
News, PAH News

Sandoz Launches Treprostinil Injection, First Remodulin Generic, in the US for PAH Treatment
March 28, 2019April 18, 2019
The pharmaceutical company Sandoz announced the commercialization of an injectable form of the vasodilating ...
News

Oxygen Manifesto, Part 1: Advice from 3 Respiratory Specialists
March 27, 2019March 29, 2019
Note: This is the first part of a two-part series written in collaboration with ...

March 2, 2018March 1, 2018

Being Patient Is Difficult when You’re a Patient

Columns, Recharged and Rewired - a Column by Brittany Foster

“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more

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