Updates

January 22, 2019January 22, 2019
Patient’s Lawsuit Put Emphasis on ‘Urgency’ in Deciding Organ Transplants in US

Waiting for a lung transplant in the intensive care unit at a New York hospital in November 2017, a 21-year-old pulmonary hypertension patient named ... Read more
January 21, 2019January 21, 2019
Actelion Needs Further Studies on Opsumit Treatment for Inoperable CTEPH, US FDA Says

Actelion Pharmaceuticals has received a complete response letter from the U.S. Food and Drug Administration (FDA) specifying that the company needs to conduct further studies and ... Read more
January 18, 2019January 18, 2019
PH Linked to Bronchopulmonary Dysplasia Resolves Over Time in Many Preemies, Study Reports

Pulmonary hypertension (PH) associated with bronchopulmonary dysplasia (BPD) resolves over time in nearly two-thirds of premature babies, a study shows. However, the findings also ... Read more
January 17, 2019January 17, 2019
Dutch Hospital Uses Non-invasive Tool to Diagnose PH in Sarcoidosis Patients Early

Doctors in the Netherlands are using the VMS Heart Analysis System, developed by Ventripoint Diagnostics, for early diagnosis of pulmonary hypertension (PH) in ... Read more
January 16, 2019January 16, 2019
Tracleer May Be More Cost-effective Than Some Other PAH Therapies, Review Study Reports

Treatment of pulmonary arterial hypertension (PAH) with Tracleer (bosentan) may be more cost-effective than epoprostenol medications or palliative care, but less than ... Read more

News, PAH News

β-thalassemia Patients at Risk for PAH Show Improvements on Tracleer, Case Report Says
January 14, 2019January 17, 2019
Tracleer (bosentan) treatment improves mean pulmonary arterial pressure (mPAP) in β-thalassemia patients with potential ...
CTEPH News, News, PAH News

Long-term Adempas Treatment May Reverse Right Heart Deficits in Patients with PAH, CTEPH, Study Finds
January 11, 2019January 14, 2019
Long-term treatment with Adempas (riociguat) can reduce right heart size and improve the heart’s ...
News

INOpulse Device Improves Physical Activity in PH-ILD Patients, Phase 2b Trial Shows
January 10, 2019January 21, 2019
Treatment with INOpulse for eight weeks is safe and provides clinically meaningful improvements in ...
News, PH News

Team PHenomenal Hope Accepting Applications for Research Grants
January 9, 2019January 9, 2019
With the goal of enhancing the lives of pulmonary hypertension (PH) patients, including through ...
News, PAH News

Repeated Measurements of Biomarkers May Improve Prognostic Accuracy in PAH-CHD Patients, Study Finds
January 7, 2019January 7, 2019
Repeated measurements of different biomarkers over time offer a better risk prediction than single ...
News, PH News

Chinese PH Patients Form Beijing-based Advocacy Group
January 4, 2019January 21, 2019
Pulmonary hypertension (PH) patients in China, the world’s most populous nation, finally have their ...

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Obstructive Sleep Apnea Affects Cardiac Function of CTEPH Patients
January 3, 2019January 11, 2019
Worse measures of blood flow, arterial oxygenation, and cardiac function may underlie the poor ...
2018: My Year in Review
January 2, 2019December 20, 2018
2018 was triumphant. I accomplished several of my long-term goals. I had zero organ ...
Top 10 Pulmonary Hypertension Stories of 2018
January 2, 2019January 15, 2019
Focusing on Happiness During the Holidays
December 21, 2018December 19, 2018
Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 20, 2018January 10, 2019
Morphogen-IX Raises $23.2 Million to Develop PAH Therapy Candidate MGX292
December 20, 2018January 9, 2019

Anxiety and Depression in PAH Patients Could Be Eased with Psychosocial Therapies, Review Study Suggests
December 19, 2018January 8, 2019
Non-pharmacological approaches such as relaxation training, slow breathing, and cognitive behavioral therapy could help ...
Delayed Diagnosis, More Comorbidities Affect Elderly PH Patients’ Prognosis, Study Suggests
December 17, 2018December 17, 2018
Study Links Certain High-density Lipoproteins, Better Survival in PAH Patients
December 14, 2018January 3, 2019
With PH, I Know Each Hospital Stay is Not My Last
December 14, 2018January 3, 2019

Analytics 4 Life, Actelion Testing Non-invasive Diagnostic Tool CorVista for PH
December 13, 2018December 13, 2018
Analytics 4 Life and Actelion Pharmaceuticals have announced a collaboration agreement to test CorVista ...
Echocardiograms Are an Emotional Experience After PH and CHD
December 12, 2018December 21, 2018
Genetic Variants Near Two Genes Linked to PAH Risk, Large Study Reports
December 12, 2018January 3, 2019

News, PH News

Study Suggests DLCO as Indicator of Survival in Group 3 Pulmonary Hypertension
December 10, 2018December 10, 2018
Low diffusing capacity of the lung for carbon monoxide (DLCO) is a key indicator ...
News, PAH News

Switching from Tyvaso to Uptravi Safe, Convenient for PAH Patients, Phase 3b Study Finds
December 7, 2018December 7, 2018
Switching treatment from United Therapeutics’ Tyvaso (inhaled treprostinil) to Actelion’s Uptravi (oral selexipag) is safe ...
Columns, Recharged and Rewired - a Column by Brittany Foster

Reminders for the Days I Feel Like I’m Not Doing Enough
December 7, 2018January 8, 2019
Some days, I feel well enough to make the most out of each day. ...
CTEPH News

CTEPH Software Receives FDA’s Breakthrough Device Designation
December 6, 2018December 7, 2018
The U.S. Food and Drug Administration (FDA) granted Breakthrough Device Designation to software being ...
News, PAH News

Uptravi, PAH Treatment, Now Publicly Funded in 9 of 10 Canadian Provinces
December 5, 2018December 6, 2018
Uptravi (selexipag) is now available with public funding for pulmonary arterial hypertension (PAH) patients ...
News, PAH News

Morphogen-IX Announces MGX292 as Treatment Candidate for PAH
December 3, 2018December 4, 2018
Biotechnology company Morphogen-IX recently announced that it will be further developing MGX292 as its treatment ...
News, PAH News

PhaseBio Advances New Phase 2b Trial to Test PB1046 in Patients with PAH
November 30, 2018December 4, 2018
PhaseBio Pharmaceuticals started dosing its investigational compound PB1046 in patients with pulmonary arterial hypertension ...
Columns, PHighting Words - a Column by Mike Naple

An Invisible Illness and the PHight of Our Lives
November 29, 2018December 4, 2018
Wonder Woman has an invisible jet. Harry Potter has an invisibility cloak. I have ...
News, PAH News, PH News

Specific Bone Marrow Cells Drive PAH Development, Blocking Serotonin Receptors a Potential Treatment, Study Suggests
November 29, 2018December 5, 2018
A subset of bone marrow cells known as proangiogenic cells (PACs) may drive the ...
News, PH News

First Clinical Site Announced for Phase 2 Trial Testing Levosimendan for PH Linked to Heart Disease
November 28, 2018November 29, 2018
The Stanford University School of Medicine is the first clinical site for a Phase ...
News, PH News

Raising Levels of Immune Cell Receptor Known as TLR3 May Better Treat PH, Early Study Reports
November 26, 2018November 28, 2018
A receptor protein present in immune cells is a potential target for treating pulmonary ...
News, PAH News

Arena Pharmaceuticals, United Therapeutics Reach Global Licensing Agreement for Ralinepag
November 21, 2018November 28, 2018
Arena Pharmaceuticals and United Therapeutics have reached a global licensing agreement for the pulmonary arterial hypertension (PAH) ...
Columns, Recharged and Rewired - a Column by Brittany Foster

Choosing to Say ‘Yes’ to Treatments Isn’t Always Easy
November 16, 2018November 26, 2018
One of the most challenging realities I face with chronic lung disease is that ...
News, PAH News

Heart’s Right Side Size Affects Heart Function in PAH Patients, Study Shows
November 16, 2018November 26, 2018
Pulmonary arterial hypertension (PAH) patients with an enlarged right side of the heart show ...
News, PAH News, PH News

Revatio at Low Doses Safe and of Benefit to Children with PH, Study Reports
November 15, 2018November 26, 2018
Revatio (sildenafil) in low doses is safe and can be of benefit to children ...

March 2, 2018March 1, 2018

Being Patient Is Difficult when You’re a Patient

Columns, Recharged and Rewired - a Column by Brittany Foster

“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more

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