Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening ... Read more
Updates
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Young PH Researchers Boosted by Foundation Partner Grants
The ATS Foundation Research Program and Pulmonary Hypertension Association have announced the 2019 recipients of their partner grants, totaling $210,000, for young researchers dedicated ... Read more -
Using INOpulse Nitric Oxide Device Improves Blood Flow in Lungs in PH-PF, New Trial Data Suggest
Use of Bellerophon Therapeutics’ INOpulse device — which provides nitric oxide to the lungs — significantly improved parameters related to blood flow in the ... Read more -
Daring to Be Rare by Believing in the Power of Hope
Year-round, the parent company of this website, BioNews Services, strives to provide pertinent and updated information about complex, rare diseases. Staying current with medical ... Read more -
Noticing the Subtle Signs of Pulmonary Hypertension
For most of my life, my illnesses were invisible. I could walk into a public place and not expect sideways glances or stares. I ... Read more
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Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day ... -
Proteins Made on Lettuce Leaves May Lead to Safe and Less Costly PAH Treatment, Study Suggests
Oral delivery of two proteins produced on lettuce leaves and involved in blood vessel ... -
Case Report Suggests Lack of Vitamin C as PAH Cause
Vitamin C deficiency can cause pulmonary arterial hypertension (PAH), a new case report suggests, ... -
Promoting Organ Donation by Sharing My Son’s Good Fortune
National Donor Day in the U.S. was on Feb. 14. However, every day when ... -
Celebrating My 15-year PH Diagnosis Anniversary
Today is Valentine’s Day, y’all. I know that some of you are eating fancy ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more