Growing up with a rare, chronic illness can draw a lot of attention. Specifically, it can raise a lot of questions, especially from other kids. I can’t remember an age when I wasn’t required to explain my health situation to others, particularly my peers. Early on, absences from school would…
Building on positive data from an earlier study, Allrock Bio has dosed the first patients in a small clinical trial testing ROC-101, its oral treatment candidate for pulmonary hypertension (PH). The open-label Phase 2a ROCSTAR study (NCT07175038) is recruiting patients across the U.S., Canada, and Europe — including…
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Three months after giving birth to my second son in 2023, my life changed in a way I never could have imagined. I am a mom of three boys. Being a “boy mom” has always been the center of my world — busy days, loud laughter, endless energy, and the…
Children with pulmonary hypertension (PH) engage in fewer and shorter bouts of intense physical activity than their peers, according to a new study that measured data from sensors worn on the wrist. Moreover, kids with more severe PH generally had “worse physical testing,” as well as “a steeper decline…
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