Updates
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30 Days Of PH: My Girlfriend’s Son Has PH
Day 24 of 30 Days of PH Topic: My Girlfriend’s Son Has PH This is Galen’s Story The world of PH is still ... Read more -
Returning to My Exercise Routine, One Dance Step at a Time
Since being diagnosed with pulmonary hypertension in 2017, I have had a complicated relationship with exercise. I have been quite erratic in my approach to ... Read more -
30 Days of PH: A Devastating Diagnosis Will Become Riley’s Blessings
Day 23 of 30 Days of PH Topic: A Devastating Diagnosis Will Become Riley’s Blessings This is Kelly’s Story @kellylt00 Our daughter Riley is ... Read more -
Reflections From a Thankful Caregiver
Are you a pulmonary hypertension (PH) caregiver? If so, then November has been your special month. Thanksgiving is celebrated this week in the U.S., ... Read more -
Sotatercept Improves Exercise Capacity in PAH, Early SPECTRA Data Show
Treatment with Acceleron Pharma’s sotatercept leads to substantial improvements in cardiac parameters, as well as exercise tolerance and capacity, in people with pulmonary arterial hypertension ... Read more
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more