Updates

April 20, 2020April 21, 2020
Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Based on recently conducted surveys, we know there is a subset of patients with pulmonary hypertension who are currently not on therapies approved by ... Read more
May 29, 2020May 29, 2020
Epigenetic Changes May Boost PAH Development, Study Reports

Changes in the epigenetic profile — a collection of marks that turn genes on and off — of pulmonary arterial endothelial cells from people ... Read more
May 28, 2020May 28, 2020
COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for new biotech startups, it has begun to cause delays ... Read more
May 27, 2020May 27, 2020
Kalytera to Acquire R-107, Potential Liquid Nitric Oxide Treatment for PAH

Kalytera Therapeutics intends to acquire Salzman Group, a company developing R-107 — a liquid form of nitric oxide — to possibly treat pulmonary arterial hypertension (PAH), lung ... Read more
May 25, 2020May 25, 2020
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 ... Read more
May 22, 2020May 22, 2020
Nicotine Inhaled Often, as with E-cigarette Use, Linked to PH in Mice

Chronic inhalation of nicotine, the addictive component of all tobacco products, is enough to trigger changes in pulmonary arteries and in the heart’s right ... Read more

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March 2, 2018September 11, 2019

Being Patient Is Difficult when You’re a Patient

Columns, Recharged and Rewired - a Column by Brittany Foster

“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Epigenetic Changes May Boost PAH Development, Study Reports

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Kalytera to Acquire R-107, Potential Liquid Nitric Oxide Treatment for PAH

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Nicotine Inhaled Often, as with E-cigarette Use, Linked to PH in Mice

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Study Reveals How Sotatercept Works in PAH Rat Model, Supporting Its Potential for Patients

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Finding Love with a Chronic Illness

Caring for the Caregiver

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Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

I Need to Be Understood, Not Fixed

Obesity Linked to Lower Risk of Mortality in PH Patients, Study Finds

INOmax Use Aids Premature Babies with PH, Phase 4 Study Shows

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

At-home System of Inhaled Nitric Oxide Treats PAH Patient Infected With COVID-19

I’m Celebrating a Year with You

Celebrating World PH Day and National Nurses Week

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

EMA Grants Priority Medicines Designation to Sotatercept for PAH

Opsumit Can Ease Strain on Right Ventricle and PAH Severity, Trial Shows

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Dealing with the Fear of Losing Independence

Can I Have a Bit of Normalcy Without Fear?

The Power of Words

Expressing My Fears Gives Me a Sense of Freedom

LIQ861, Inhaled Form of Treprostinil, Fares Well in Phase 3 Trial for PAH

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Pulmonary Hypertension Association to Hold Virtual Fundraiser on World PH Day

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Coping with Skipped Doctors’ Appointments During COVID-19 Lockdown

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

PH Has Changed Me in Profound Ways

The Mental Wellness Challenges of an Introvert

Benefits of Orenitram for PAH Patients Detailed in New Data

FDA Grants Orphan Drug Designation to Cereno Scientific’s Lead Candidate CS1 for PAH

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