Talk Therapy Has Helped Me to Reach Acceptance and Learn to Advocate
Life with chronic illness is not easy. My days are unpredictable, and I often feel unsure and uneasy about what lies ahead. Some days ... Read more
Updates
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FDA Approves Generic Bosentan Tablets in US for PAH Treatment
A new generic version of Actelion’s Tracleer (bosentan) developed by Teva Pharmaceutical was approved by the U.S. Food and Drug Administration (FDA) ... Read more -
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare disease patients and their ... Read more -
Balloon Pulmonary Angioplasty and Adempas Both Effective for Inoperable CTEPH, Analysis Shows
A new meta-analysis assessing balloon pulmonary angioplasty (BPA) and Adempas (riociguat) for treating inoperable chronic thromboembolic pulmonary hypertension (CTEPH) found both treatment ... Read more -
Oxygen Manifesto, Part 2: the Devices (Advice from 3 Respiratory Specialists)
Note: This is the second article in a three-part series written in collaboration with respiratory therapist Mark W. Mangus Sr., RRT, RPFT, FAARC, and ... Read more
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Chloride Channel TMEM16A May Be Therapeutic Target for IPAH, Study Suggests
Patients with idiopathic pulmonary arterial hypertension (IPAH) have greater levels and activity of a ... -
The Hidden Truths About My Strength
I wish I had a dollar for every time I’ve been described as strong, ... -
Opsumit Shows Promise for Portopulmonary Hypertension in Phase 4 Trial
Treatment for 12 weeks with Actelion Pharmaceuticals’ Opsumit (macitentan) significantly improved blood vessels’ resistance in ... -
Moving Forward Despite the Setbacks
In the last few months, I have spent more time in the hospital than ... -
Mouse Study Finds Causal Link Between Iron Levels and Pulmonary Hypertension
A new study in mice demonstrated that a lack of iron in muscle cells ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more