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What topics regarding PH are you interested in learning more about?
I’m creating an overview of an upcoming podcast for PH. I’d like to know what you all would like to learn more about. The podcast will talk with patients, physicians, and more. Education and resources are crucial when navigating life with PH. Please help shape the information by sharing what matters most to you.
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2 Replies
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This is wonderful! I’m hoping our members will open up and share the topics most important to them and why. To help us get started, I’d like to call out a few people who are usually comfortable sharing their thoughts. I hope they will encourage other members to share. Remember folks…PH Awareness Month is coming up in November!
@V.R. Peterson @Tracey @carol-volckmann @perry mamigonian @Cris Dingman @Jimi Mcintosh @Buglady @Terese Tuohey @Randolph Reynolds @ky @David Chapman
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Thank you Colleen @Colleen for passing along the BreathtakingAwareness interest in making Podcasts from patients, physicians etc of what are some of the issues folks would like to hear about.
Personally I would like to see any information that include new studies, upcoming therapies, insights into those with PH that also have compromising health issues. Fighting PH and autoimmune diseases and how to handle those, who to see, which clinics and/or doctors deal with both.
There is still so much misinformation out there it boggles my mind. Pulmonologists still giving out life expectancies 2-4 years – not just your MD but Pulmonologists!!! It enrages me!
I would like to see Pulmonary departments give out info on the PH Forums as part of their other hand outs on resources.
Thank you again Colleen, I hope this finds you, your parents and Cullen safe and well. Sending lots of Light and Love ❤️.
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