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Does anyone have experience with a PH Center in Rochester, NY?
One of our newest members, @Downtown, says, “Hi all, I was diagnosed via stress echo last week. I need to find a ph specialty clinic near me. I live in Buffalo, NY. I was told there is one in Rochester, NY. Does anyone go there and can you tell me anything about it? I also have a blood Cancer called Myelodysplasia….At this point, I have so many questions, and I am not on any tx for PH.So glad to be in this forum!”
I an incredible long-term PHriend who lives in Buffalo, just like me. She goes to the Cleveland Clinic’s PH Center, collaborating with a dedicated local team. She’s been on this journey for over 15 years since I’ve known her.
Has anyone here encountered a PH team in Rochester, NY? Your experiences and insights can immensely support her embarking on this new PH adventure. We all understand the sense of isolation and fear that comes with a recent diagnosis. Let’s come together and lend a helping hand!
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2 Replies
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I haven’t been to the PH clinic in Rochester but considered going there when I lived in northern New York for a second opinion. My PH doctor had good things to say about the doc there. It is a Pulmonary Hypertension Associated accredited care center, so I imagine you’d be in good hands.
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Hi, @Cathy Brown. thanks so much for sharing that information. Your PH doctor saying positive things about the Rochester clinic says much!
How have you been? You’ve been missed around here.
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