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Options for Starting a Family
Hi All,
I’m 29 years old and recently diagnosed with idiopathic PAH (Jan 2021). My husband and I had just started trying to conceive when we learned about my diagnosis. We don’t have any children yet. I’ve been dreaming about our kids for 10 years so I am not ready to give up on having a biological child. My genetic panel came back negative so no concern of passing this along. I also don’t have any other comorbidities at this time (knock on wood).
I’m interested to hear from others what paths you chose to start a family. Did you proceed with pregnancy in spite of your diagnosis? Did you use IVF? Did you use a surrogate? How was the egg retrieval process?
I am painfully aware of the risk to myself and a baby if I were to become pregnant. I also know that adoption is an option, but I would like to explore others first. Just trying to get a sense of what others have lived through and decided for their families 🙂
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2 Replies
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Hi @mknevada, this is an excellent question despite it being painful for many. I do have a few PHriends who have had a baby, and all was ok. Of course, as you mentioned, you know the risks involved.
I have heard of one couple using IVF. Just remember, like our PH stages, meds, etc., this too is based on each individual.
I hope that some others within the forums can offer you some more helpful information. But I did want to share this link in case you want to watch this.
-Big hugs, my neighbor <3
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@mknevada I’m sorry you are going through this but so happy that you brought it up. I’m sure you are not alone with this concern. It’s a topic not discussed enough in the PH world. I hope some of our members will jump in and share their feelings and experience.
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