Thank you Colleen @Colleen for passing along the BreathtakingAwareness interest in making Podcasts from patients, physicians etc of what are some of the issues folks would like to hear about.
Personally I would like to see any information that include new studies, upcoming therapies, insights into those with PH that also have compromising health issues. Fighting PH and autoimmune diseases and how to handle those, who to see, which clinics and/or doctors deal with both.
There is still so much misinformation out there it boggles my mind. Pulmonologists still giving out life expectancies 2-4 years – not just your MD but Pulmonologists!!! It enrages me!
I would like to see Pulmonary departments give out info on the PH Forums as part of their other hand outs on resources.
Thank you again Colleen, I hope this finds you, your parents and Cullen safe and well. Sending lots of Light and Love ❤️.