Breaking News: Tyvaso DPI Approved For PHA and PH-ILD

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    • #34483
      Jen Cueva
      Keymaster

        Yesterday a PH News article shared some exciting news. he FDA has approved the Tyvaso DPI formula for PH and PH related to interstitial lung disease (ILD). Tyvaso DPI is the only dry powder formula.

        You can read the article here. Some of the highlights are below.

        * Only dry powder formula
        * Smaller inhaler
        * Fits in the palm of your hand
        * Efficient prostacyclin dosing
        * Tyvaso and Tyvaso DPI only two to treat PH-ILD

        If you’re on Tyvaso or another prostacyclin, has your doctor mentioned switching you to Tyvaso DPI? If not, do you plan to ask about it?

      • #34506
        Carol alexander
        Participant

          Yes Iam on Tyvaso  and I do plan on asking my Doc Iam going Wednesday to Temple this would be s much more convenient than taking the liquid and than an inhaler Iam excited about it.  Let you know what he says

          • #34520
            Jen Cueva
            Keymaster

              Hi @carol-alexander, you made me smile big as I saw your post. 😀

              How are you doing? I know it must be challenging after losing your husband recently. I’ve been thinking about you, my PHriend.

              When will you see your PH doctor again to ask about this new form of Tyvaso? I hope you and others can switch to it because it sounds much more convenient.

          • #34537
            Carol alexander
            Participant

              Hi Jen I go tomorrow at Temple Heart I had an eco so will  see it would be so much better if I could Iam on a 4hr secluded with the Tyvaso. He will have to discuss it with my pulmonary Docture she has me on Trellgy inhaler.

              • #34540
                Jen Cueva
                Keymaster

                  Hi @cdvol3gmail-com, I’ll say an extra prayer for your echo tomorrow. Please let us know how things go once you’re rested after a busy day. ????

              • #34592
                Carol alexander
                Participant

                  Went to my appointment and will be trying the new Tyvaso Dpi

                  when they get it Iam really excited about it. I will be one of the first.

                • #34596
                  Jen Cueva
                  Keymaster

                    Hi @carol-alexander, that’s excellent news. I’m so excited for you, too, and can’t wait to hear how you like it better. It sounds promising, too.

                    How was your Echo? Did he say anything about that, or was this before the Echo? Thanks so much for sharing your exciting news with us. I’m sending you love, hugs, and prayers from San Diego.

                  • #34926
                    Jen Cueva
                    Keymaster

                      Hi @carol-alexander, have you started the new Tyvaso DPI yet? You’ve been on my mind. I hope that you are doing well and taking care of yourself.

                      Remember, it’s OK to ask for help and accept help.

                    • #35166
                      Jen Cueva
                      Keymaster

                        @carol-alexander shared an update, and I wanted to share it here so all will see it. When a member posts an update, not everyone sees it, so it may be missed. I replied to her on her update.

                        Here’s her update- “@jenc
                        Hi Iam on the list to get the new Tyvaso inhaler but sence my doses are so small they don’t have it yet but Iam on the list can’t wait. I was reading about some of the other ph patients voices changing mine has changed to I start to talk and than it my old ladies voice that comes out clear my voice and start over and it happens again I thought it was because of the oxygen.”

                        • #35172
                          Colleen Steele
                          Keymaster

                            Awesome news @carol-alexander. Fingers crossed you don’t have to wait too long! Keep us updated.

                          • #35760
                            Jen Cueva
                            Keymaster

                              Hi @carol-alexander, how are things going with the Tyvaso DPI? I heard that they now have other dosages available. Is yours one of those? Have you heard back from your PH specialist or nurse?

                              Did you use a specialty pharmacy like Accredo to obtain this new Tyvaso device? I had the opportunity to see the device recently, and I am super impressed.

                              Who else is on the older Tyvaso inhaler interested in this much smaller, disposable device?

                          • #36140
                            Jen Cueva
                            Keymaster

                              Hi @carol-alexander, here is the post we were talking about, the new Tyvaso powder. How do you feel about it? Are you having any trouble?

                              Is anyone else here who has transitioned to the new Tyvaso dry powder? Carol would like to hear from you if so.

                              I’m sending you a big hug and love, @carol-alexander. How is your mental health doing?

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