Research & Development

[Jen Cueva]

Yesterday a PH News article shared some exciting news. he FDA has approved the Tyvaso DPI formula for PH and PH related to interstitial lung disease (ILD). Tyvaso DPI is the only dry powder formula.

You can read the article here. Some of the highlights are below.

* Only dry powder formula
* Smaller inhaler
* Fits in the palm of your hand
* Efficient prostacyclin dosing
* Tyvaso and Tyvaso DPI only two to treat PH-ILD

If you’re on Tyvaso or another prostacyclin, has your doctor mentioned switching you to Tyvaso DPI? If not, do you plan to ask about it?

[Carol alexander]

Yes Iam on Tyvaso  and I do plan on asking my Doc Iam going Wednesday to Temple this would be s much more convenient than taking the liquid and than an inhaler Iam excited about it.  Let you know what he says

[Jen Cueva]

Hi @carol-alexander, you made me smile big as I saw your post. 😀

How are you doing? I know it must be challenging after losing your husband recently. I’ve been thinking about you, my PHriend.

When will you see your PH doctor again to ask about this new form of Tyvaso? I hope you and others can switch to it because it sounds much more convenient.

[Carol alexander]

Hi Jen I go tomorrow at Temple Heart I had an eco so will  see it would be so much better if I could Iam on a 4hr secluded with the Tyvaso. He will have to discuss it with my pulmonary Docture she has me on Trellgy inhaler.

[Jen Cueva]

Hi @cdvol3gmail-com, I’ll say an extra prayer for your echo tomorrow. Please let us know how things go once you’re rested after a busy day. ????

[Carol alexander]

Went to my appointment and will be trying the new Tyvaso Dpi

when they get it Iam really excited about it. I will be one of the first.

[Jen Cueva]

Hi @carol-alexander, that’s excellent news. I’m so excited for you, too, and can’t wait to hear how you like it better. It sounds promising, too.

How was your Echo? Did he say anything about that, or was this before the Echo? Thanks so much for sharing your exciting news with us. I’m sending you love, hugs, and prayers from San Diego.

[Jen Cueva]

Hi @carol-alexander, have you started the new Tyvaso DPI yet? You’ve been on my mind. I hope that you are doing well and taking care of yourself.

Remember, it’s OK to ask for help and accept help.

[Jen Cueva]

@carol-alexander shared an update, and I wanted to share it here so all will see it. When a member posts an update, not everyone sees it, so it may be missed. I replied to her on her update.

Here’s her update- “@jenc
Hi Iam on the list to get the new Tyvaso inhaler but sence my doses are so small they don’t have it yet but Iam on the list can’t wait. I was reading about some of the other ph patients voices changing mine has changed to I start to talk and than it my old ladies voice that comes out clear my voice and start over and it happens again I thought it was because of the oxygen.”

[Colleen Steele]

Awesome news @carol-alexander. Fingers crossed you don’t have to wait too long! Keep us updated.

[Jen Cueva]

Hi @carol-alexander, how are things going with the Tyvaso DPI? I heard that they now have other dosages available. Is yours one of those? Have you heard back from your PH specialist or nurse?

Did you use a specialty pharmacy like Accredo to obtain this new Tyvaso device? I had the opportunity to see the device recently, and I am super impressed.

Who else is on the older Tyvaso inhaler interested in this much smaller, disposable device?

[Jen Cueva]

Hi @carol-alexander, here is the post we were talking about, the new Tyvaso powder. How do you feel about it? Are you having any trouble?

Is anyone else here who has transitioned to the new Tyvaso dry powder? Carol would like to hear from you if so.

I’m sending you a big hug and love, @carol-alexander. How is your mental health doing?

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