This group unites PH patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to pulmonary hypertension. Information shared in this group is public.
Clinical trials are crucial to making progress in the treatment of pulmonary hypertension. Researchers often struggle to recruit patients for trials as they often involve myriad additional tests, with a chance of receiving a placebo instead of the therapy.
What do you think about clinical trials? Have you participated in any? Are there any clinical trials on the horizon that interest you?
In the last two years I have participated in over a dozen laboratory trials for Heart Failure with preserved Ejection Fraction. Many Group 2 patients have HFpEF. These are not “pill trials” for the most part but are NIH/VA funded physiological research trials to figure out what’s going on electrically,mechanically and chemically in an effort to find what might be of future therapeutic value.
I just did one in the last two weeks that has to do with vascular responses to a certain leg exercise. One day was in an MRI scanner the other in the labs. It is astounding what scientists can learn from these simple exercises! The number of intricate instruments is equally astounding. I wouldn’t miss opportunities like this for anything.
If anyone is interested I’ll describe some of them in detail.
That’s really interesting, Beverly. I think more patients would be willing to participate in trials like this where they don’t have the fear of receiving a placebo instead of the drug. I am always happy to give blood or undergo other tests that will help them learn about PH. Would love to hear more about the trials you’re involved in!
I feel that clinical trials play a critical role in developing new treatments and drugs and also make life easier for people suffering from such illnesses. Without any trials, there would be no treatments for PH. Medical science needs trials and trials need participants. It brings the breakthrough in curing incurable diseases and disorders. I wouldn’t know how it was the patients going through an illness and participating in a trial. How it must feel. As a Scientist, it is very subjective. An answer to a cause is the way. The field I work in, I haven’t heard of a lot of clinical trials for PH. The reason could be that it is a rare disease so getting people having PH for a trial would be difficult. Hence, all the clinical research organization could have a delay in finding new drugs. I hope I can find some. I’ll surely post them here. Beverly, I’d like to hear more, too.
Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.