February 17, 2020February 17, 2020

Case Report Suggests Lack of Vitamin C as PAH Cause

News, PAH News

Vitamin C deficiency can cause pulmonary arterial hypertension (PAH), a new case report suggests, highlighting the need to test vitamin C levels in people with PAH. The report, “Vitamin ... Read more

February 17, 2020February 13, 2020

Promoting Organ Donation by Sharing My Son’s Good Fortune

Columns, Life As A Caregiver - a Column By Colleen Steele

National Donor Day in the U.S. was on Feb. 14. However, every day when I look at my son, I feel inspired to raise awareness about the lifesaving benefits ... Read more

February 14, 2020February 12, 2020

Celebrating My 15-year PH Diagnosis Anniversary

Columns, Worth the PHight - a Column by Jen Cueva

Today is Valentine’s Day, y’all. I know that some of you are eating fancy chocolates and sipping wine, all the while blowing kisses to your love. But for me, ... Read more

February 14, 2020February 12, 2020

I Will Not Be Silenced in an Emergency Room

Columns, Recharged and Rewired - a Column by Brittany Foster

“Can you keep it down? There are other sick people here.”  These were the words spoken to me in an emergency room last weekend. I was crying and voicing ... Read more

February 14, 2020February 14, 2020

Buildup of Oxidized LDLs in Lungs, Plasma Promote PH Progression, Study Shows

News

The buildup in the lungs and plasma of oxidized low-density lipoproteins, or LDLs — one of the major vehicles for the transport of cholesterol and other types of fatty ... Read more

February 12, 2020February 12, 2020

Aria CV’s PH System Designated as Breakthrough Device by FDA

News, PH News

Aria CV‘s medical device for treating pulmonary hypertension (PH) has been given a Breakthrough Device designation by the United States Food and Drug Administration (FDA). The Aria CV PH ... Read more

February 11, 2020February 11, 2020

FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

News

The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. Yet even with its enormous ... Read more

February 10, 2020February 10, 2020

Switching to Inhaled Treprostinil Combo Safe, Effective in Stable PAH Patients, Study Suggests

News, PAH News

Switching from injectable treprostinil or epoprostenol to a combination therapy including inhaled treprostinil appears to be safe, well tolerated, and effective for a select group of patients with clinically stable ... Read more

February 10, 2020February 7, 2020

Words of Support for Those Transitioning from Hope to Grief

Columns, Life As A Caregiver - a Column By Colleen Steele

Pulmonary hypertension (PH) is an incurable, life-threatening disease. This reality is a gaping wound that patients and loved ones try to cover and protect with hope. But at some ... Read more

February 7, 2020February 7, 2020

PhaseBio Reports Positive Effects of PB1046 Therapy in PAH Patient in Case Study

News, PAH News

The biopharmaceutical PhaseBio announced positive results from a case study involving a patient with pulmonary arterial hypertension (PAH) who received treatment with PB1046, a new therapy using the company’s ... Read more

February 7, 2020February 5, 2020

My Smile Is Hiding Chronic Pain

Columns, Worth the PHight - a Column by Jen Cueva

If you saw me you would probably notice my bright blue eyes (thanks, Pawpaw) or my huge smile. You might not realize that behind the smile, I am hiding ... Read more

February 7, 2020February 5, 2020

Demi Lovato Sang About My Struggles

Columns, Recharged and Rewired - a Column by Brittany Foster

A couple of weeks ago, I listened with tears in my eyes as Demi Lovato sang her heart out at the Grammy Awards. I can’t relate to her addiction, ... Read more