July 19, 2019July 17, 2019
To My Support System: Thank You for Never Giving Up on Me
Columns, Recharged and Rewired - a Column by Brittany Foster
Chronic illness often leaves me feeling frustrated with my physical and mental health. When I am feeling overwhelmed by ... Read more
July 19, 2019July 16, 2019
Here Are My Tips for Managing Your Summer Road Trip
Columns, Worth the PHight - a Column by Jen Cueva
Summer is here, and perhaps a road trip is in your plans for the season. I’ve always looked forward ... Read more
July 19, 2019July 19, 2019
Small RNA Molecule May Slow Pulmonary Vascular Remodeling to Treat PAH, Study Suggests
News
A tiny RNA molecule known as microRNA-410 (miR-410) was seen to slow the proliferation of endothelial cells in the ... Read more
July 18, 2019July 18, 2019
European Initiative Targets Diagnosis, Treatment of Rare Diseases
News
A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the ... Read more
July 18, 2019July 18, 2019
Long-term Orenitram Use Can Help PAH Patients Walk Longer Distances, Extension Trial Finds
News, PAH News
Long-term use of Orenitram led to moderate but durable, and dose dependent, improvements in exercise capacity in pulmonary arterial ... Read more
July 17, 2019July 17, 2019
Raising Levels of Nur77 May Help Halt Progression of PH, Study Suggests
News, PAH News, PH News
Increasing levels of the receptor Nur77 in cells lining the blood vessels of patients with pulmonary hypertension (PH) may ... Read more
July 15, 2019July 10, 2019
The Therapeutic Benefits of 40 Years of Journal Writing
Columns, Life As A Caregiver - a Column By Colleen Steele
As a little girl, I developed a huge crush on the character John Boy from the television drama “The ... Read more
July 15, 2019July 15, 2019
Left Heart Dysfunction Plays Key Role in Severe PAH, Study Suggests
News, PAH News
Left heart dysfunction may play an important role in severe pulmonary arterial hypertension (PAH), and should be monitored to ... Read more
July 12, 2019July 9, 2019
Acknowledging the Loss of My Health Allows Me to Move Forward
Columns, Recharged and Rewired - a Column by Brittany Foster
It is difficult to admit defeat. It is even more of a challenge to acknowledge something as a loss. ... Read more
July 12, 2019July 9, 2019
What Makes a Good Patient-Doctor Relationship?
Columns, Worth the PHight - a Column by Jen Cueva
Living with pulmonary hypertension (PH) for the past 14 years has been a challenge, to say the least. ... Read more
July 12, 2019July 12, 2019
Extracorporeal Life Support Helps iPAH Patients Needing Lung Transplant, but Outcomes Remain Poor
News, PAH News
Extracorporeal life support improves the lung performance of people with idiopathic pulmonary arterial hypertension (iPAH) who need a lung transplant. ... Read more
July 11, 2019July 11, 2019
Implantable CardioMEMS System Useful in Predicting Heart Failure Risk in PAH, Study Shows
News, PAH News
Abbott’s CardioMEMS HF system — a wireless heart failure monitor — can be safely used to monitor blood flow ... Read more

July 19, 2019July 17, 2019

To My Support System: Thank You for Never Giving Up on Me

Columns, Recharged and Rewired - a Column by Brittany Foster

Chronic illness often leaves me feeling frustrated with my physical and mental health. When I am feeling overwhelmed by my body’s symptoms or experiencing emotional distress, I am not ... Read more

July 19, 2019July 16, 2019

Here Are My Tips for Managing Your Summer Road Trip

Columns, Worth the PHight - a Column by Jen Cueva

Summer is here, and perhaps a road trip is in your plans for the season. I’ve always looked forward to this time of year. However, living with pulmonary hypertension ... Read more

July 19, 2019July 19, 2019

Small RNA Molecule May Slow Pulmonary Vascular Remodeling to Treat PAH, Study Suggests

News

A tiny RNA molecule known as microRNA-410 (miR-410) was seen to slow the proliferation of endothelial cells in the lung and ease pulmonary vascular remodeling in a mouse model ... Read more

July 18, 2019July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

News

A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

July 18, 2019July 18, 2019

Long-term Orenitram Use Can Help PAH Patients Walk Longer Distances, Extension Trial Finds

News, PAH News

Long-term use of Orenitram led to moderate but durable, and dose dependent, improvements in exercise capacity in pulmonary arterial hypertension (PAH) patients, results from an open-label extension trial show. These findings ... Read more

July 17, 2019July 17, 2019

Raising Levels of Nur77 May Help Halt Progression of PH, Study Suggests

News, PAH News, PH News

Increasing levels of the receptor Nur77 in cells lining the blood vessels of patients with pulmonary hypertension (PH) may help halt progression of the disease by enhancing the signaling ... Read more

July 15, 2019July 10, 2019

The Therapeutic Benefits of 40 Years of Journal Writing

Columns, Life As A Caregiver - a Column By Colleen Steele

As a little girl, I developed a huge crush on the character John Boy from the television drama “The Waltons.” I was attracted to his aspiration of becoming a ... Read more

July 15, 2019July 15, 2019

Left Heart Dysfunction Plays Key Role in Severe PAH, Study Suggests

News, PAH News

Left heart dysfunction may play an important role in severe pulmonary arterial hypertension (PAH), and should be monitored to optimize treatment, according to new research. The study, “Impact of ... Read more

July 12, 2019July 9, 2019

Acknowledging the Loss of My Health Allows Me to Move Forward

Columns, Recharged and Rewired - a Column by Brittany Foster

It is difficult to admit defeat. It is even more of a challenge to acknowledge something as a loss. Living with chronic illness and pulmonary hypertension, I’ve felt defeated ... Read more

July 12, 2019July 9, 2019

What Makes a Good Patient-Doctor Relationship?

Columns, Worth the PHight - a Column by Jen Cueva

Living with pulmonary hypertension (PH) for the past 14 years has been a challenge, to say the least. Along this journey, an important relationship for me has been with ... Read more

July 12, 2019July 12, 2019

Extracorporeal Life Support Helps iPAH Patients Needing Lung Transplant, but Outcomes Remain Poor

News, PAH News

Extracorporeal life support improves the lung performance of people with idiopathic pulmonary arterial hypertension (iPAH) who need a lung transplant. But patients usually enter the transplant list at advanced stages ... Read more

July 11, 2019July 11, 2019

Implantable CardioMEMS System Useful in Predicting Heart Failure Risk in PAH, Study Shows

News, PAH News

Abbott’s CardioMEMS HF system — a wireless heart failure monitor — can be safely used to monitor blood flow (hemodynamics) changes and help predict the risk of heart failure ... Read more