30 Days of PH: Potts Shunt
30 Days of PH
View this post on Instagram Day 20 of 30 Days of PH Topic: Potts shunt This is Teresa’s story @leavesfromthetre Shaye turned 19 in May, she was ... Read more
Antibody Able to Block Protein That Promotes PAH and May Bolster Existing Therapies, Study Finds
News, PAH News
An antibody that recognizes and blocks the activity of osteoprotegerin, a protein involved in the development of pulmonary arterial hypertension (PAH), was able to stop and even reverse disease ... Read more
30 Days of PH: Familial PH
30 Days of PH
View this post on Instagram Day 19 of 30 Days of PH Topic: Familial PH This is Kari’s story @karijersey In 1999, my family and I ... Read more
30 Days of PH: Retirement
30 Days of PH
View this post on Instagram Day 18 of 30 Days of PH Topic: Retirement This is Marcia’s story: I was diagnosed with PH in July of 2005 ... Read more
Living Life Focused on Quality, Not Quantity
Columns, Life As A Caregiver - a Column By Colleen Steele
Parents sometimes view birthdays, milestones, and even achievements as bittersweet. Witnessing a child mature and grow brings joy, but sentimentality tends to mix with the happiness. Many a parent ... Read more
Bellerophon’s INOPulse Device Leads to Clinically Meaningful Improvements in PH-ILD, Early Data Shows
News, PH News
Use of Bellerophon Therapeutics’s INOpulse device led to clinically meaningful improvements in people with pulmonary hypertension associated with interstitial lung disease (PH-ILD), according to initial data from an ongoing ... Read more
30 Days of PH: Implantable Pump
30 Days of PH
View this post on Instagram Day 17 of 30 Days of Ph Topic: Implantable pump This is Monica’s story @monsphight At 17 years old, ... Read more
30 Days Of PH: PTE Surgery
30 Days of PH
View this post on Instagram Day 16 of 30 Days of PH⠀ Topic: PTE surgery ⠀ ⠀ This is Bonnie’s story.⠀ ⠀ My journey with PH began in March ... Read more
30 Days of PH: Beating PH And Cancer
30 Days of PH
View this post on Instagram Day 15 of 30 Days of PH⠀ Topic: Beating PH and Cancer⠀ ⠀ This is Cathy’s story @ebayqueen55⠀ ⠀ My name is Cathy. I ... Read more
Rare Disease Film Festival Highlights Patient and Researcher Unity
News
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more
While Difficult to Share, Here Is My PH Story
Columns, Worth the PHight - a Column by Jen Cueva
November is Pulmonary Hypertension Awareness Month, a good time to share a little more about my journey with y’all. My hope is that you will tell your stories and ... Read more
My Recent Surgery Triggered My PTSD
Columns, Recharged and Rewired - a Column by Brittany Foster
Last week, I scrolled through Pinterest on my phone as I was wheeled into the endoscopy suite for a J-tube placement. I was doing everything I could to distract myself. I have ... Read more