July 1, 2020July 1, 2020
Tyvaso Improves Exercise Capacity of PH Patients in Group 3 WHO Classification, Data Show
News, PH News
Tyvaso (inhaled treprostinil) significantly improved the exercise capacity of people with World Health Organization (WHO) Group 3 ... Read more
June 29, 2020June 25, 2020
I’m Not ‘Lazy,’ I’m Sick
Chronically Uncool – a Column by Ellie Bird, Columns
One of the hardest parts of having chronic health problems is the guilt. Many people struggling with complex conditions ... Read more
June 29, 2020June 26, 2020
The Three Words That I Find Most Difficult to Say
Columns, Worth the PHight - a Column by Jen Cueva
If I asked you which three words you find most difficult, how would you answer? Some may say, “I ... Read more
June 29, 2020June 25, 2020
How to Survive a Medical Move
Columns, Life As A Caregiver - a Column By Colleen Steele
It was a bittersweet experience when my parents sold my childhood home. I grew up and left for college, ... Read more
June 29, 2020June 29, 2020
Sotatercept Reduces Heart Strain, Improves Functional Capacity in PAH, Data Show
News, PAH News
Sotatercept (ACE-011) leads to clinically meaningful reductions in heart strain and improvements in functional capacity in patients with pulmonary ... Read more
June 26, 2020June 24, 2020
Learning to Love Myself Is Challenging With Chronic Illness
Columns, Recharged and Rewired - a Column by Brittany Foster
Whenever I am feeling defeated by my body or mind, I throw on some Whitney Houston classics. One of ... Read more
June 26, 2020June 26, 2020
Way of Fine-tuning Vagus Nerve Stimulation, Potential PH Therapy, Seen
News
Anodal block, a technique based on electrical nerve stimulation, allows for the selective activation of fibers in the vagus ... Read more
June 24, 2020June 24, 2020
Newborns Seen at PH Risk if Fetal Growth Poor and Meconium Inhaled at Birth
News, PH News
Newborns were seen to be at an increased risk of pulmonary hypertension (PH) if they developed poorly while in ... Read more
June 23, 2020June 23, 2020
Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic
News, syndicated
The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during ... Read more
June 22, 2020June 18, 2020
It’s Important to Be Your Own Health Advocate
Chronically Uncool – a Column by Ellie Bird, Columns
Before I got sick I thought doctors knew everything. I thought doctors would know exactly what to do if ... Read more
June 22, 2020June 22, 2020
Tiny RNA Molecule, MicroRNA-483, May Help Ease PAH, Early Study Finds
News, PAH News
Increasing the levels of a tiny RNA molecule known as microRNA-483 enhanced the function of endothelial cells and eased the symptoms of ... Read more
June 22, 2020June 19, 2020
How to Become Obsessed with Survival
Columns, Life As A Caregiver - a Column By Colleen Steele
Among the many challenges of living with a life-threatening condition are the daily demands it places on both the ... Read more

July 1, 2020July 1, 2020

Tyvaso Improves Exercise Capacity of PH Patients in Group 3 WHO Classification, Data Show

News, PH News

Tyvaso (inhaled treprostinil) significantly improved the exercise capacity of people with World Health Organization (WHO) Group 3 pulmonary hypertension associated with interstitial lung disease (PH-ILD), achieving its primary endpoint ... Read more

June 29, 2020June 25, 2020

I’m Not ‘Lazy,’ I’m Sick

Chronically Uncool – a Column by Ellie Bird, Columns

One of the hardest parts of having chronic health problems is the guilt. Many people struggling with complex conditions are branded “lazy.” And sometimes we even brand ourselves. Before ... Read more

June 29, 2020June 26, 2020

The Three Words That I Find Most Difficult to Say

Columns, Worth the PHight - a Column by Jen Cueva

If I asked you which three words you find most difficult, how would you answer? Some may say, “I love you.“ Others may say, “there’s no cure.” But “I ... Read more

June 29, 2020June 25, 2020

How to Survive a Medical Move

Columns, Life As A Caregiver - a Column By Colleen Steele

It was a bittersweet experience when my parents sold my childhood home. I grew up and left for college, and my parents were moving into the home of their ... Read more

June 29, 2020June 29, 2020

Sotatercept Reduces Heart Strain, Improves Functional Capacity in PAH, Data Show

News, PAH News

Sotatercept (ACE-011) leads to clinically meaningful reductions in heart strain and improvements in functional capacity in patients with pulmonary arterial hypertension (PAH), top-line data from a Phase 2 trial ... Read more

June 26, 2020June 24, 2020

Learning to Love Myself Is Challenging With Chronic Illness

Columns, Recharged and Rewired - a Column by Brittany Foster

Whenever I am feeling defeated by my body or mind, I throw on some Whitney Houston classics. One of my favorites is the song “Greatest Love of All.” The ... Read more

June 26, 2020June 26, 2020

Way of Fine-tuning Vagus Nerve Stimulation, Potential PH Therapy, Seen

News

Anodal block, a technique based on electrical nerve stimulation, allows for the selective activation of fibers in the vagus nerve, a key nerve that runs through the neck and ... Read more

June 24, 2020June 24, 2020

Newborns Seen at PH Risk if Fetal Growth Poor and Meconium Inhaled at Birth

News, PH News

Newborns were seen to be at an increased risk of pulmonary hypertension (PH) if they developed poorly while in the womb and had meconium aspiration syndrome, meaning they inhaled their ... Read more

June 23, 2020June 23, 2020

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

News, syndicated

The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during the COVID-19 pandemic, the organization recently announced. The grants will ... Read more

June 22, 2020June 18, 2020

It’s Important to Be Your Own Health Advocate

Chronically Uncool – a Column by Ellie Bird, Columns

Before I got sick I thought doctors knew everything. I thought doctors would know exactly what to do if I was ever unwell, and that I could just mindlessly ... Read more

June 22, 2020June 22, 2020

Tiny RNA Molecule, MicroRNA-483, May Help Ease PAH, Early Study Finds

News, PAH News

Increasing the levels of a tiny RNA molecule known as microRNA-483 enhanced the function of endothelial cells and eased the symptoms of pulmonary arterial hypertension (PAH) in rat models of the disease, a ... Read more

June 22, 2020June 19, 2020

How to Become Obsessed with Survival

Columns, Life As A Caregiver - a Column By Colleen Steele

Among the many challenges of living with a life-threatening condition are the daily demands it places on both the patient and the caregivers. A life-threatening illness isn’t something one ... Read more