September 18, 2019September 18, 2019

FDA Grants ‘Humanitarian Use Device’ Status to Tool for PAH Biopsies, Supporting Possible Approval

News

The Endoarterial Biopsy Catheter (EABC), a tool for performing biopsies on lung artery walls to better evaluate pulmonary arterial hypertension (PAH) in people and responses to treatment, has been ... Read more

September 16, 2019September 18, 2019

Exercise and PH: Becoming Active Again After Diagnosis

Chronically Uncool – a Column by Ellie Bird, Columns

After I was diagnosed with pulmonary hypertension (PH), I was so scared of doing any further damage to my heart that I stopped exercising altogether. I even gave up ... Read more

September 16, 2019September 18, 2019

My Son’s Friendship Was Not Defined by PH

Columns, Life As A Caregiver - a Column By Colleen Steele

My son Cullen was excited to tell me he’d made a friend on his first day of kindergarten. Fifteen years later, he and Keenan remain best friends. Cullen’s battle ... Read more

September 16, 2019September 18, 2019

Acceleron’s Sotatercept Receives FDA’s Orphan Drug Status for PAH

News

The U.S. Food and Drug Administration (FDA) has granted orphan drug status to sotatercept for the treatment of pulmonary arterial hypertension (PAH), according to Acceleron Pharma, the therapy’s manufacturer. ... Read more

September 13, 2019September 11, 2019

Weight Management Is an Ongoing Challenge While Living with PH

Columns, Recharged and Rewired - a Column by Brittany Foster

For the first 18 years of my life, I rarely thought about my weight. I was active, enjoyed playing sports, and had a muscular, athletic build. My body type ... Read more

September 13, 2019September 11, 2019

Natural Disaster Preparedness Tips for PH Patients

Columns, Worth the PHight - a Column by Jen Cueva

The number of devastating natural disasters has increased significantly in the past several years. These billion-dollar disasters strike some states repeatedly. Therefore, residents in those areas realize the importance ... Read more

September 13, 2019September 13, 2019

FDA Agrees to Review Trevyent, with PumpPatch System, as PAH Treatment

News, PAH News

The U.S. Food and Drug Administration (FDA) has agreed to review a request to approve Trevyent (treprostinil) as a treatment of pulmonary arterial hypertension (PAH), United Therapeutics announced in a press release. An ... Read more

September 12, 2019September 12, 2019

Israeli Group Pushes for Better Awareness and Treatment of Pulmonary Hypertension

News

For two-and-a-half painful years, Jerome Maharaj, 42, had no idea what was wrong with him. Born in South Africa, he came to Israel in 1996 and settled in Ma’agan, ... Read more

September 11, 2019September 11, 2019

FDA Grants Breakthrough Device Status to SoniVie’s TIVUS System for PAH

News

The U.S. Food and Drug Administration (FDA) has granted the designation of breakthrough device to SoniVie’s Therapeutic Intra-Vascular Ultrasound (TIVUS) System for the treatment of people with pulmonary arterial ... Read more

September 9, 2019September 11, 2019

I’m Breathing Easier After Receiving My PH Diagnosis

Chronically Uncool – a Column by Ellie Bird, Columns

Welcome to Ellie Bird’s “Chronically Uncool,” a new Pulmonary Hypertension News column. When I was at university, I had a boyfriend who was obsessed with fitness. I had always been ... Read more

September 9, 2019September 11, 2019

The Therapeutic Benefits of Owning a Pet

Columns, Life As A Caregiver - a Column By Colleen Steele

My son was 8 years old when he was diagnosed with pulmonary hypertension (PH). Children are supposed to be nurtured, but the attention showered on a child living with ... Read more

September 9, 2019September 11, 2019

Two Non-Invasive Tests Predict PAH Prognosis in Patients with Congenital Heart Disease, Study Reveals

News, PAH News

Only two non-invasive diagnostic tests are required to best predict the risk of adverse events in people with congenital heart disease (CHD)-associated pulmonary arterial hypertension (PAH), a new study ... Read more