Dealing with a chronic and rare disease like pulmonary hypertension (PH) can be complicated for people around those living with PH. Mystery surrounds the disease and the sheer lack of knowledge can confuse friends and family who don’t even have a clue about your condition. Sometimes they say some things they shouldn’t (even when they think they are just being nice).
Have you ever heard comments like “you don’t look sick!”; “you shouldn’t be parked there, that’s for disabled people”, “you are so boring, you never come out anymore!”; “is it contagious?!”? Those are just a few of the comments people sometimes direct to chronically ill patients. In this video shared by Gifted Life, Lauren shares some great examples of some things that just shouldn’t be said to people living with a chronic illness. Feel free to share the message with others.