Chloe Temtchine, a singer who suffers from pulmonary hypertension and decided to advocate for the disease using her career, is performing at the New York City O2 breathe Gala on November 6, 2014. Temtchine is going to sing her theme Be Brave, which was launched last March, as an anthem for everyone who suffers from the severe disease as well as their families.
All of the proceeds from the O2 breathe Gala will be used to support the Pulmonary Hypertension Association (PHA), whose mission is finding a cure for PH. The PHA not only has invited Chloe Temtchine for the event, but has also launched a social media campaign to promote her song with videos, using Facebook, Twitter, e-mail, and iTunes. The association expects to reach more people willing to help fund the projects that they support, as well as raise awareness about the disease.
“Ms. Temtchine is a role model for all women, but especially those with severe illnesses, showing that it’s still possible to go after the life you love. She’s smart and hilarious too — she and her producer husband, who helps with Chloe’s daily activities, call her oxygen tank ‘Steve Martin;’ they even put a tie on it sometimes!,” said Amy Carlberg, from Bust Magazine.
Temtchine has several videos online and her own personal online site, which can be seen here, where she shares her story and helps other people suffering from the same disease.
“The song is twangy and energetic, and springboards off the bluegrass and banjo-laden sounds that have been ruling the pop charts,” Carlberg added. “The title of the song reminds us of the splendid courage it takes to live day to day with a disease or a disability. It reminds us that our perceptions of people should not be based on these factors, because that would only serve to disable them further.”
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