Pulmonary hypertension is a serious and hard disease to live with, especially if we’re talking about young patients. Being diagnosed with a lung disease like PH as a child or a teen can be really complicated. We’ve put together some tips on how to parent your child while she/he is living with pulmonary hypertension (source: PHWA website):
1. Rest assured that you or anything you’ve done caused your child to develop pulmonary hypertension.
2. Don’t forget to take care of yourself. Even though your child is sick and you have to care for them, you also have to look after yourself.
3. Look for answers and ask for help. It’s OK to feel overwhelmed with everything, but it’s also OK to seek help and to accept it when offered.
4. Establish routines for your own tasks so you can reduce the stress at home, at work, or even in your social life.
5. Find support among your family, your friends, or even in a support group, where you will find people in the same situation you are.
6. Get organized and always keep track of your child’s appointments, your own appointments, events, and other activities you may have.
7. Step out of your comfort zone and try new things. Look for new activities you can do as a family and especially with your child with PH. Arts, crafts, music, even cooking lessons can help you and your child cope with this together.
Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.