The Pulmonary Hypertension Association (PHA) International PH Conference and Scientific Sessions in Dallas, Texas broke an attendance record for the organization’s 25-year history of events for awareness, scientific advancement and strong community connection.
Patients, families, caregivers, medical professionals, advocates and others —including celebrities Terrence J and Chloe Temtchine – were among 1,600 conference attendees and millions more who were reached through social media, according to a news release.
Actor and television show host Terrence J. is the celebrity ambassador for PHA’s current 25th anniversary year-long celebration. With a fan base of nearly 2 million followers on Twitter, #Heart2CurePH, and by using social media to raise awareness and educate about pulmonary hypertension (PH), hopes to help PHA save lives. At the Conference, Terrance posed for photographs with attendees.
Singer Chloe Temtchine, whose perseverance to continue as an entertainer after she was diagnosed with PH in 2013, also helps to raise awareness for PH. Chloe wrote, “Be Brave,” a song about her journey with PH that has become an anthem to many in the PH community. Temchine joined several PHA campaigns, including the 2015 Breathe Food Truck and Music Concert Series, and the Enterprise CarShare promotion in New York City, and performed at the conference.
About 550 conference attendees joined the PHA’s Journey’s luncheon on June 18 where Temtchine debuted her new music video featuring children with PH. The organization said about 2 million Twitter followers were reached during the performance which was also attended by Terrence J.
The music video can be seen here. To donate to PHA text “PHA” to 56512.
PH is a disease of the lungs in which a high blood pressure affects the normal function of the heart, potentially leading to right heart failure. The disease has a survivability rate of 2.8 years, if not treated.