May 5 is World Pulmonary Hypertension Day, but how does it help those who suffer from the disease?
World Pulmonary Hypertension Day is a global event to raise the profile of this little-known lung disease. More than 80 different organizations around the world work together to better educate the public about how pulmonary hypertension affects patients and to raise money, so researchers can continue working to improvement treatments and looking for a cure.
Because the symptoms of pulmonary hypertension can mimic those of other less serious lung conditions, many patients are misdiagnosed for years. This delay in diagnosis often means that by the time the patient is able to get the right treatment, the condition has progressed to a point where it will affect their lifespan.
World PH Day also promotes access to new drugs and treatments that can help improve patients’ quality of life and extend their lifespan. The event is now in its fifth year, beginning in 2012 at a scientific symposium in Madrid, Spain. Organizers chose the date because on May 5, 1982, the first child died of the disease in Spain.
If you want to get involved in World PH Day, look for local events or plan your own. Alternatively, you can donate to your local pulmonary hypertension charity or non-profit organization. You can share your stories and photos of the day using the hashtag #WorldPHDay on Twitter and Facebook.
Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.