Explaining Why PH Is a Neglected Condition

In this video from MD Magazine TV, Dr. Stephen Y. Chan talks about why he feels pulmonary hypertension (PH) has been a neglected condition when it comes to researching treatments.

MORE: Approved pulmonary hypertension drugs reduce hospitalization. Find out more.

Chan explains that when he was taught about pulmonary hypertension in medical school 25 years ago, there was no treatment for the condition and patients would only live for around two years unless they were lucky enough to have a lung transplant. Nowadays, there are a number of FDA-approved drugs used to help treat the symptoms of PH but much more research needs to be done to find better drugs and therapies.

The doctor explains that the number of pulmonary hypertension diagnoses is increasing each year so there needs to be more pulmonologists to treat the condition.

MORE: Watch this video which explains blood flow in the pulmonary arteries. 

Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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3 comments

  1. Andrea Rice says:

    Cardiologist saw after I was hospitalized for chest pain and on the cardiac floor told me average person lives without intervention up to 20 years, much better outcome than just 2 years. Believes I could have had PH much earlier than being diagnosed December 2016. Many people are mis-diagnosed with allergies instead of seeing the underlying cause. Suffered for years with shortness of breath, using my inhalers that offered little relief, and the other gadgets told I needed 2 have air purifiers, plastic coverings for mattress and box spring, and the countless hours of dusting 2 ensure a dust free home which is next 2 impossible 2 attain and for me being told I am allergic 2 everything that grows where I live I soon became a prisoner in my own place venturing outside at certain times of the day and night. Not what I call living life 2 the fullest by any means. Since I’ve started treatment since diagnosed, I have perhaps a brighter longer life span than before. But I still don’t consider living my life 2 it’s fullest potential with this chronic illness that has no cure. Not in denial but learning 2 cope with the shortcomings has been challenging 2 say the least.

  2. Jean says:

    Can you give me names of pulmonologists in my area…doctors who have up-to-date knowledge of potential treatments?
    My diagnosis was made at the Mayo Clinic, Rochester, MN but I live in Madison, Wisconsin. The pulmonary hypertension was found during a catheterization while examining progress of my IHSS (idiopathic hypertrophic sub aortic stenosis). I am having daily breathing issues, and sleep nightly with a CPAP machine. Thank you.

  3. louise loya says:

    I recently found out that I have arterial hypertension.. because I was afraid I might have something else I asked my Dr. at the VA clinic in Jacksonville fla and she clarified that yes I have AH.In 2016 I had Afib surgery and thought well all is fine..im devastated and not knowing how long I have to live is frightening…is there hope out there.IM 72 YEARS YOUNG

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