30 Days of PH: Teen Life Post-Transplant

30 Days of PH: Teen Life Post-Transplant
0
(0)

View this post on Instagram

Day 2 of 30 Days of PH ⁣⠀ Topic: Teen life post-transplant ⁣⠀ ⁣⠀ This is Sarah’s story @my_journey_with_ph⁣⠀ ⁣⠀ My name is Sarah, and I was diagnosed with Pulmonary Hypertension at birth. I’m now 15 years old, and can finally say that I’m now PH free! This past 1 ½- 2 years I was going downhill. I was in and out of the hospital, finding out that my pressures were just increasing more, eventually reaching over 200. ⁣⠀ ⁣⠀ The transplant was being talked about more often. I was terrified, nervous, worried, and devastated. But under all of that was a glimmer of hope that everything would be ok. I knew that I had to trust in God. I was listed for transplant two weeks this past summer. I received the call on July 17, 2019. I was wheeled back at about 5:00 PM. Saying goodbye to my family was the hardest part. I didn’t know if I would see them again, I was bawling my eyes out and so was everyone else. ⁣⠀ ⁣⠀ I’m now three months post-transplant. I can say it’s been the hardest, but most rewarding three months ever. I’ve had to learn all new symptoms, medicines, how to breathe, how to walk, how to use my diaphragm correctly, and tons more. I’ve been able to experience running and swimming. I've experienced going to school and walking up the stairs, not needing oxygen at night, and being able to hang out with my friends. I am grateful for every bit of it, all of these things that I haven’t been able to do my entire life. Thank you, donor, for making my impossible, possible. You and I will make the most valuable and rewarding memories in this lifetime. 💚 ⁣⠀ #30daysofPH ⁣⠀ #doublelungtransplant⁣⠀ #pulmonaryhypertension ⁣⠀ #phawarenessmonth

A post shared by Pulmonary Hypertension News (@pulmonaryhypertensionnews) on

Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
×
Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
Latest Posts
  • tips
  • advance directive
  • comments
  • birthday

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

Leave a Comment

Your email address will not be published. Required fields are marked *

Pin It on Pinterest

Share This