Pulmonary Hypertension Awareness Month Highlights Disease Risks and Symptoms

Pulmonary Hypertension Awareness Month Highlights Disease Risks and Symptoms

November is Pulmonary Hypertension Awareness Month, and this year, the Pulmonary Hypertension Association (PHA) is highlighting risk factors and symptoms associated with the disease.

PHA’s social media campaign, titled “PHaces of Hope,” is based on stories from pulmonary hypertension (PH) patients and their caregivers, as well as healthcare team members. From social media efforts to advocacy, the organization is offering a variety of ways to both raise funds and disease awareness.

There are also other events this month, including runs and walks in Dallas; Murfreesboro, Tennessee; Pompano Beach, Florida; and Rochester, New York.

A Facebook Live Chat on Nov. 13 about chronic thromboembolic pulmonary hypertension (CTEPH) will feature a Q&A with expert Peter Hountras, MD, from the UCHealth University of Colorado Hospital.

Throughout the month, PHA will continually add “PHaces of Hope” testimonials to celebrate individuals within the PH community who inspire and empower others. People can submit their stories, along with a photo or short video, at phassociation.org/shareyourhope.

In her story, patient LaKeshia Orr writes: “My hope is that I can help increase awareness for pulmonary hypertension (PH) from a place of strength and optimism. Sure, PH is a rare and serious medical condition with no cure as it stands. However, when you see me, you’ll be met with warmth, a smile, optimism and enough hope for the both of us! I want to share my positive attitude and optimistic outlook with everyone I come in contact with.”

Nov. 7 is PH Awareness Month Day of Action, a day set aside for advocacy on behalf of the PH community. PHA is urging support for legislation regarding insurance and medication, and will help schedule a phone conversation or visit with a lawmaker or staff. Plus, supporters may join the organization’s advocacy network.

“Although treatment options exist to help people with PH, early diagnosis is still a problem for many individuals and that is why awareness of the disease is so critical,” Karen A. Fagan, MD, PHA board of trustees chairwoman, said in a press release. “Our campaign targets awareness among those in the medical community as well as patients, since early diagnosis leads to better outcomes.”

PHA is the nation’s oldest and largest nonprofit patient organization dedicated to the PH community. Pulmonary Hypertension Awareness Month is also supported by Actelion Pharmaceuticals.

For more information about PHA resources and initiatives, please check the association’s toolkit, and info about ways to raise funds for research and other efforts.

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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Patrícia holds her PhD in Medical Microbiology and Infectious Diseases from the Leiden University Medical Center in Leiden, The Netherlands. She has studied Applied Biology at Universidade do Minho and was a postdoctoral research fellow at Instituto de Medicina Molecular in Lisbon, Portugal. Her work has been focused on molecular genetic traits of infectious agents such as viruses and parasites.
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Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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