30 Days of PH: Growing Up With A Mom With PH

30 Days of PH: Growing Up With A Mom With PH
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Day 11 of 30 Days of PH⁣⠀ ⁣Topic: Growing up with a mom with PH ⁣⠀ ⁣This is Kayla’s story @adventure.nutritionist⁣⠀ ⁣⠀ I’m the daughter of a mother with Pulmonary Hypertension. In other words, I am the daughter of a resilient woman who is a fighter 365 days a year. It’s no surprise that I’ve held grudges, asked “why my mom”, been bitter, and emotional over the years. I don’t think there are many things worse than watching your mother suffer and it be completely out of your control. But, rather than focus on the negatives, I’ll be the reflection of my mother and share some positives.⁣⠀ ⁣⠀ I remember when my mother first became sick, we’d sing “ain’t no mountain high, ain’t no valley low” together after doctors’ appointments. It’s no secret that we make the best out of everything, we’ve shared many memories and become best friends along the way. There’s something truly interesting about a relationship when you add a twist of fear of losing each other in there.⁣⠀ ⁣⠀ For instance, we had a fear that she wouldn’t be there at my high school graduation. Instead, she fought her way to my college graduation. She had a hidden fund for when the day came when I’d get married but instead… God guided her down that aisle on my wedding day. I cherish our coffee dates, Netflix couch days, 60 calls on a daily basis or our quick getaways.⁣⠀ ⁣⠀ ⁣Something I find interesting is my mom often brings up “feeling guilty about me having to deal with all of this”. But what she doesn’t recognize is that I’ve grown into the woman I am by watching her be a strong and positive woman who leaves her mark everywhere she goes. Because of her, I’ve developed a mindset that “you only live one life” and I go out and chase dreams like tomorrow is my last day.⁣⠀ ⁣⠀ Pulmonary hypertension has created an environment where our family focuses on quality time, loving each other harder, and forgiving more easily. Although I would have loved my mom to not develop this terrible disease, I am thankful for the ability to pull our family even closer and help us grow as individuals.⁣⠀ ⁣⠀ #30daysofPH #family #strongwomen

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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