30 Days Of PH: PTE Surgery

30 Days Of PH: PTE Surgery

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Day 16 of 30 Days of PH⠀ Topic: PTE surgery ⠀ ⠀ This is Bonnie’s story.⠀ ⠀ My journey with PH began in March of 2004 when I had blood clots in my lungs, twice! I had experienced this 4 years before, too. With a routine visit with my doctor, I was told, the damage was bad, I would need a heart/lung transplant. I was referred to a cardiology specialist in Reno.⠀ ⠀ After examination, the doctor left the room for what seemed like an eternity. When he returned he told me I had PH. I was a possible candidate for a new surgery that he heard about at a recent conference. That new surgery was called PTE surgery, he referred me to UCSD.⠀ ⠀ When I arrived there I went through a series of tests. I was told that I was a good candidate for the surgery. Without the surgery, I had about 6 months to live. My pulmonary pressures then were around 125! After talking with the family and medical team, I elected to have the PTE surgery. It wasn’t easy, but so happy I did it.⠀ ⠀ ⠀ I was in the hospital for 21 days. It repaired the large vessels in my lungs, but not the small ones. I am still on oxygen 24/7. I also take lots of meds including Adempas and Opsumit. I am happy that I don’t have to go to doctor visits weekly, usually, it is every 4 months now. I live a fairly active life. I just have to pace myself, which I often forget. ⠀ ⠀ As of August, I have lived 15 more years than I was supposed to. My pulmonary pressure is consistently near 50. PTE surgery enabled me to see my kids graduate from high school and see them both get married. I also now enjoy my 4 grandbabies, 3 boys, and a girl. I was actually in the room when my granddaughter was born.⠀ ⠀ ⠀ I love to garden, one of my hobbies is to can the vegetables we grow in the garden and trees. God left me here for a reason. I don't ask why. I just enjoy it every day. I try very hard to keep a great attitude. You can't just give up. My life has meaning, a purpose and I look forward to many more years of it. ⠀ ⠀ ⠀ Enjoy life, remember " today’s research could be tomorrow's cure". ⠀ ⠀ #30daysofPH #PTE

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