30 Days of PH: Retirement

30 Days of PH: Retirement
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Day 18 of 30 Days of PH⁣ Topic: Retirement⁣ ⁣ This is Marcia’s story:⁣ ⁣ I was diagnosed with PH in July of 2005 after having symptoms for 15 months and told, “it’s just asthma”. After going into left heart failure, the cardiologist performed a right and left heart cath to find what was going on. With no explanation, he told me I had severe PH and go see this other doctor. He was a PH specialist from UTSW, one of only 8 in Texas. ⁣ ⁣ I was teaching 4th grade, this was summer. I was hospitalized in the 1st week of school. I planned to take 90 days off to get meds and back on my feet. At the end of the 90 days, I was too sick to go back to teaching. I applied for disability retirement since I was 3 years shy of retirement. I was officially retired from 25 years of teaching by the end of the year.⁣ ⁣ At 51, I was too young to retire and too sick to work. I had never been seriously sick, part of my brain was in denial that this would have a bad outcome. I was thinking about what I wanted to do with my new phase of life. I thought about volunteering, but with good days and bad days, it was hard to commit.⁣ ⁣ I learned all that I could about PH, I ordered the PH Survival Guide. I read the PHA message board regularly. On PH Central, I talked with other members. My first conference was in Minneapolis in 2006, I took my husband. He was depressed seeing the patients on oxygen and in wheelchairs. For me, it's like a family reunion seeing all of my PHriends. Learning all I could about PH gave me a sense of control. ⁣ ⁣ Trying to use my teaching skills to help others in the PH community. I volunteered to work the phone and as a mentor.I helped our Dallas SG leader until she died and I took it over. I worked with the FW leader, to continue the annual PHun Walk to raise money and awareness. These things gave me a sense of purpose, sorely lacking after having my career and lifestyle ripped away so fast.⁣ ⁣ 14 years later and retirement age has mellowed me. I now enjoy retirement with quilting, reading, traveling, and enjoying my grandsons.⁣ ⁣ #30daysofPH #retirement

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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