30 Days of PH: Living Independently

30 Days of PH: Living Independently
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Day 21 of 30 Days of PH⁣ Topic: Living Independently ⁣ This is Kellie’s story @ms_magiwine ⁣ ⁣ You never know how strong you are until being strong is the only choice you have. Those words never rang more true, until the day I was diagnosed with Idiopathic Primary Arterial Hypertension. I was admitted to the hospital and started on IV therapy because my numbers were flying high. It was the best option to hopefully help with my symptoms and improve or keep my PH stable. That moment, the life that I knew, was changed forever. ⁣ ⁣ Because I am on IV medications for PH, living alone can be challenging. Because of not having family close by or a significant other to help, I was left to figure out how to manage everyday life on my own. What I quickly learned, was to stay organized and plan way ahead. Keep in mind that nothing will ever go perfect, and that's okay. You learn to have your phone close by at all times. I had to learn how to rest when your body tells you, not when your mind says it. It's okay if you are tired, you have no help, so, have a seat. When there's a will, there's a way. ⁣ ⁣ Living with PH is tough for anyone. Living independently with PH comes with its own complications. Learning to do things at a snail's pace has been the hardest part. However, having to get up everyday, to take care of everyday things for myself. It gives me the drive. Even more, it shows the world that PH doesn't define me. But, in fact, just maybe I define PH.⁣ ⁣ ⁣ #30daysofPH #Independentliving #pumplife #PeriwinkleForPH2019

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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2 comments

  1. Jo Ann White says:

    I am living independently with pah also. Yes it is hard but not impossible. The most difficult thing for someone who has always lived life at a dead run is allowing a lot more time to do things. I do have someone who comes in once a week to do what I cannot, and lovely neighbors who take out my trash and bring my mail and newspaper to the door. My dogs, fortunately, are small and trained to use a pen in the house so I do not have to walk them. I am also able to get out for now on d tanks with a bonsai regulator that last me 3-4 hours at 5-6 liters. I am even able to continue to go out to dinner and the theater for now.

    • Jen Cueva says:

      Hi JoAnn, thank you for reading and keeping up with our 30 Days of PH posts. If you are on Instagram, you can find us there also. We also have a PH Forum that you can join and talk with others with PH if you choose. The forum link is on the website where you read these stories.

      Living alone with PH, I am sure it can be a challenge most days. I am happy that you have help and also good neighbors to keep an eye on you. I am sure that your oxygen helps as you mention you can go out to dinner and the theater. Doing some of the things that we enjoy helps us mentally and physically.

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