30 Days of PH : Men Get PH, Too

30 Days of PH : Men Get PH, Too
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Day 23 of 30 Days of PH ⁣ Topic: Men get PH, too⁣ ⁣ This is Wayne’s story⁣ ⁣ Throughout my initial symptoms and misdiagnosis, my then-wife seemed uninterested. During my CTEPH surgery and recovery, she continued this mindset and had no desire to learn about my disease. As I slowly was recovering after my surgery, she decided she was no longer willing to be my caregiver. She left and divorced me. ⁣ ⁣ What I learned was pulmonary hypertension is a difficult disease to understand not only as a doc, but as a spouse, partner, friend, or caregiver. It is difficult even for a patient to understand. After several years alone and finding Facebook PH groups, I saw a post from Morgan Nuchols and just knew she was the one. We talked online, visited each other's homes and spent time together at the 2018 conference.⁣ ⁣ We continue to grow closer to each other and build a stronger relationship even though it is a long-distance relationship at this point. What I most want to share and make aware to others is that PH is a difficult disease to add to a relationship. PH can make things more difficult and stressful. ⁣ ⁣ As a man, I expected that I would provide an income, take care of repairs, upkeep around the house and normal life chores. I was not able to do any of that, so I focused on trying to improve my health. This was not easy for me. It was a long slow process for me. Before diagnosis, I had never heard of pulmonary hypertension.I had a hard time wrapping my head around the information that my PH the specialist gave me. This can be overwhelming. The local PH support group "found me" .They helped me to make a shift in my hope for improvement, better quality, and a longer life. There is always hope! ⁣ #30daysofPH #CTEPH #men⁣ ⁣ ​

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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