30 Days of PH: Farm Life

30 Days of PH: Farm Life
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Day 27 of 30 Days of PH⁣ Topic: Farm life⁣ This is Jhenna’s story @jpacelli821⁣ ⁣ Where do I begin? Being diagnosed at 22 years old was NOT easy, although a PH diagnosis at any age is horrible. I was a manager at PETCO at my diagnosis, and we just bought our home. The term ”terminally ill” wasn't in my vocabulary, and I wasn't giving up that easily. ⁣ ⁣ Transitioning from a hard worker to a disabled person, who needed help doing the simplest things, was demoralizing but I dug deep and continued on. I started SubQ Remodulin from the start. Getting used to the idea of a pump 24/7 was not easy. It also has horrible side effects, that lived up to their expectations. After being on meds for 2 months, I started to notice an improvement. I was slowly being able to do more, and be more independent! ⁣ ⁣ After 3 years, we had the opportunity to move to western NY on a farm. It was the greatest decision of our lives! When we moved here, I wanted to be outside all the time and moving, something I rarely did in CT. I had the urge to get back into horses after being here a year, so I looked into therapeutic riding programs. I went to a volunteer training to see if I could even still control a horse. When I was brought to meet the horses, I instantly knew this was where I was meant to be. Volunteering made me stronger, not only physically but mentally! ⁣ ⁣ Living on a farm is not easy for me. One of the first things that we purchased was an ATV. It's is a huge lifesaver if I'm having a rough day. Some days, I can't even go outside but that's okay because I will never give up. We have been given a hard path in life, but I wouldn't change anything. This disease made me who I am today and I'm proud of that. One last thing, that therapeutic program I love, I now help run it, as the Volunteer Coordinator! Helping other disabled individuals is one of the greatest rewards EVER! I might be chronically sick but I am truly blessed! ⁣ ⁣ #30daysofPH #farmlife #subQRemodulin

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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