30 Days of PH: What PH Has Taught Me

30 Days of PH: What PH Has Taught Me
5
(8)

Day 28 of 30 Days of PH⁣
Topic: What PH Has Taught Me

This is Jacque’s Story @jacque.wilkinson

Even with all the negative that comes with this disease, it has taught me so many things. First, it taught me to slow down. I was an active single mom of 4 small children when I got diagnosed. And my life flipped upside down. It hasn’t been easy, and this is something I still struggle with today, but I know I have to listen to my body and take it easy, or I will definitely pay for it later. 

PH has taught me to ask for help. This is something that doesn’t come easy to me at all. It has always been me and my children against the world. Now, it’s me, my children, and my family against the world. PH has shown me who truly deserves a place in my life, and as much as that hurts sometimes, it’s worth it. My parents have literally turned their lives upside down to make sure my babies are taken care of, so I can take care of myself. 

It has taught me to fight, truly fight. After dealing with the diagnosis itself, several bouts of pneumonia, sepsis, and most recently COVID-19, I truly learned the meaning of strength. Even when I wanted to lie down, I knew I had to get up and fight every single day. Even when it’s hard – that’s when I have to fight the hardest. The meaning of the word “fight” changes when it’s your life you are fighting for. 

Along with all the bad PH has brought into my life, I have learned to find the positive in things as well. It has brought us closer as a family, and that I am thankful for. It has taught me to see the positive in everything, even when it’s hard. To not take things for granted, because it can change in the blink of an eye. I never dreamed I’d wake up sick one day, and never get better. 

Lastly, it has taught me that sometimes it’s okay not to be okay. It’s okay to feel sick, it’s okay to be sick. It’s absolutely nothing to be ashamed of. Having PH is like swimming upstream every minute you are awake. You rarely get relief. You rarely feel okay. Even when you do, most of the time it’s short-lived. But despite it all, we keep going, And that is the true meaning of strength. 

 

Follow us on social media!
https://www.instagram.com/pulmonaryhypertensionnews
https://www.facebook.com/pulmonaryhypertensionnews 

Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. Currently, she lives in Washington state with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At the age of 14, he received a heart and double-lung transplant. He has experienced many bumps in the road but for the most part, he is doing well and living life to the fullest. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forums moderator for Pulmonary Hypertension News in 2019. In her, “Life As A Caregiver” column, Colleen is open and honest about caring for her son, his experiences living with PH, and life post-transplant. It is her ambition to educate and inspire others facing similar challenges that her family has battled and survived.

×

Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. Currently, she lives in Washington state with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At the age of 14, he received a heart and double-lung transplant. He has experienced many bumps in the road but for the most part, he is doing well and living life to the fullest. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forums moderator for Pulmonary Hypertension News in 2019. In her, “Life As A Caregiver” column, Colleen is open and honest about caring for her son, his experiences living with PH, and life post-transplant. It is her ambition to educate and inspire others facing similar challenges that her family has battled and survived.

Latest Posts
  • marriage, transplant, wise, phantom ph, gaming, weather, identity, gifts, laughter
  • marriage, transplant, wise, phantom ph, gaming, weather, identity, gifts, laughter
  • marriage, transplant, wise, phantom ph, gaming, weather, identity, gifts, laughter
  • marriage, transplant, wise, phantom ph, gaming, weather, identity, gifts, laughter

How useful was this post?

Click on a star to rate it!

Average rating 5 / 5. Vote count: 8

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

Leave a Comment

Your email address will not be published. Required fields are marked *