30 Days of PH: Planning for the Future

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by Colleen Steele |

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Day 1 of 30 Days of PH⁣
Topic: Planning for the Future ⁣

This is Hannah’s story @hrolsn  

I’ve always been a planner; I dream about the future, I make lists, I research all my options and then I make it happen. At 19 years old I was going constantly, a full time student, involved in several organizations, working part time, really enjoying my freedom and thinking about what I thought the next season of my life would be all about. Then I was diagnosed with Pulmonary Arterial Hypertension. 

I had never felt fear like that before and, while I am so grateful to have access to the best doctors (shout out UTSW in Dallas) and effective medications, I was dreading all of the losses I knew were heading my way. It felt like my future had dimmed and all of my ambitions now had to be tailored to include doctors, treatment (so many medications) and endless testing. These changes were not welcome, and I really struggled with depression and fear. 

Well, I’ve been a PAH-er for 8 years this December and during that time I’ve gotten married, moved to a new state, graduated with my bachelors and master’s in social work and earned my LMSW. I become a foster parent to a sweet, sweet babe, and am closer to God, my family, and friends; because of and despite the hardships chronic illness has brought.

PAH and subcutaneous remodulin have created some incredible challenges. Some losses can’t be planned around but the future for PAHers is still bright! I hope everyone, chronic illness in tow, is able to work towards one ambition this year. 

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About the Author

Colleen Steele avatar
Colleen Steele Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].

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30DaysofPH, PH Awareness Month

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