If you’ve been following my journey, you’re probably aware that I navigate pulmonary hypertension (PH) alongside a…
Jen Cueva
Jen Cueva lives in sunny San Diego, California, with her husband and daughter. A former nurse, her life took an unexpected turn in 2005 when she was diagnosed with group 1 pulmonary hypertension (PH). That experience reshaped her purpose, transforming her journey into one of advocacy, connection, and hope. As Manager of Partnership Relations on the Bionews Advocacy team, Jen collaborates with rare disease communities to build bridges and strengthen support systems for patients and caregivers. She also serves as a forum moderator for *Pulmonary Hypertension News*, where she writes a biweekly column exploring the emotional landscape of living with PH, from resilience and gratitude to the quiet power of community. Whether she’s sharing stories that uplift or offering words that remind others they’re not alone, Jen finds meaning in helping people feel informed, empowered, and seen. When she’s not writing or advocating, you’ll likely find her at the beach, on a coffee date, or simply enjoying the laid-back San Diego sunshine. Together, we PHight stronger.
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Articles by Jen Cueva
Over the past 19 years, amid the challenges of managing a rare disease called pulmonary hypertension (PH), I’ve…
Pulmonary hypertension (PH) has its challenges, but they’re not always visible to others. Some days, for example, it…
Inadequate. Weak. Useless. When we’re battling chronic illnesses like pulmonary hypertension (PH) and are forced to endure chronic…
A close friend and I recently discussed how our rare diseases affect our spouses. I have pulmonary hypertension (PH)…
Welcome to 2024! I enjoy the start of a new year because it allows me to reminisce about the past…
Living with a chronic illness feels like being caught in a revolving door of doctor appointments and surprise trips…
When we face setbacks from illness, it’s easy to feel like the world is crumbling around us, as if…
“To the well-organized mind, death is but the next great adventure.”― J.K. Rowling, in “Harry Potter and the…
Are you looking for the perfect present for a loved one managing a rare or chronic condition? As someone with…
I recently joined a rare disease advocacy meeting on Zoom, where the subject of the rising cost of living and…
Have you ever considered the surprising similarities between managing pulmonary hypertension (PH) and hosting Thanksgiving dinner? Like hosts who…