On Jan. 2, 2014, I stayed in bed for the third day in a…
Kathleen Sheffer
After fighting idiopathic pulmonary arterial hypertension with combined intravenous and oral therapies for 17 years, Kathleen received a heart-lung transplant on July 1, 2016. Now 24, she works as a photographer in San Francisco, California, and writes about the transition from life with PH to life with chronic immunosuppression. See her photography at kathleensheffer.com.
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Articles by Kathleen Sheffer
Dating with Chronic Illness
My health has always served as an extra filter for my relationships, romantic or otherwise. One…
The cover of New York magazine’s Nov. 27-Dec. 10,…
My Love Affair with Food
Like others in my life, my relationship to food has changed drastically since my…
Illness Teaches Gratitude
My friend Rachael got married last month, something neither of us believed she would…
My transplant team told me to avoid any upper body exercises for the first 12 weeks.
Cackling, my classmates point at my face. “You look like a ghost!” one sneers. Confused, with…
I bought into the whole, “invisible illness/disability” thing until my condition became visible, but…
Testing … 1, 2, 3
Knowing my capacity for adaptation, I always struggle to answer when doctors ask, “How do…
Last year, I wore a black face mask every day during the month of October.
For months, I agonized over how to offer my condolences to people I’d never met for…
I was spending time with a friend, another long-term PH survivor, at a cafe…