Author Archives: Mike Naple

PHighting for Rare Disease Awareness on Feb. 28

“It’s about the journey, not the destination,” is an oft-quoted phrase that is meant to remind us to be in the present and savor the special moments along the way, instead of being preoccupied with that next destination. This saying takes me back to my high school English…

PHighting Beyond Life Expectancy

Life expectancy is on my mind. Maybe it is because we are in the new year. Maybe it is my impending doctor’s appointments and tests that will update me on the progress I’ve made in my PHight with pulmonary hypertension (PH). Maybe it is because life is fragile…

Why Setting Goals Is Part of My New Normal

I cannot believe 2018 is already upon us. I don’t know about you, but 2017 has felt like one ongoing, never-ceasing stress test. For many reasons. I have never been a big believer in New Year’s resolutions. In my experience, resolutions are cobbled together the first week of…

The PHun Side of Anger

I’m going to get this out of the way. There is no fun side of anger, regardless of how you spell it. I never considered myself an angry person. I saw myself as someone who overcame obstacles, was persistent, and fought and worked hard for the things I wanted…

Aware, Rare, and Advocating for PH Year-Round

The other night I sat in my small living room as an episode of “The West Wing” played in the background. I probably was writing something or other, not giving the show my full attention. You should know that I have seen the series through and through…

Peeling Back the Layers of Chronic Illness

On a recent rainy fall day in Washington, D.C., you could find me in my small kitchen apartment cooking up a hearty beef stew. I prepped all the vegetables — the carrots, the celery, the potatoes, and the onions. It was after I started peeling an onion and…

Why I PHight: Raising Awareness This November

Did you know that I have a new appreciation for street corners? I remember when I would attempt to cross the street as a red No. 2 flashed into a blinking hand, and my foot would touch down on the opposite curb just as a car flew by.

Unreliable Narrators and My ‘Tell-Tale’ PH Heart

As the seasons change and we inch closer to Halloween, I have found myself reading the works of the great gothic writer Edgar Allan Poe, and am captivated by “The Tell-Tale Heart.” His story is about a man who does his best to convince the police, himself,…

PH’s Not-So-Invisible Cloak

It was like any other morning commute. Stand on the platform with crowds of people, all waiting for the delayed metro train, a more-than-common occurrence in Washington, D.C. When the train arrived around 8, its doors opened and I stepped aboard. Not more than 15 seconds later, a…

Fitting Your PH Carry-On in the Overhead

One holiday season a few years ago, I was sprinting through the Atlanta airport desperately trying to make a flight home to San Diego. I ran right up to the gate and was one of the last passengers to board the plane. Winded, yes, but I didn’t feel…