30 Days of PH

In recognition of PH awareness month, PH News has reached out to patients, caregivers, medical professionals and many others, to share their stories and unique perspective on PH and how it has impacted their lives. We will be sharing these stories daily though the entire month of November.

30 Days of PH: Reflections From a Long-term PH Survivor

Marcie McGregor and her grandbaby, Kinsley Clark. (Photo courtesy of Marcie McGregor) Day 6 of 30 This is Marcie McGregor’s story: Nov. 8 will mark 10 years since I was diagnosed with idiopathic pulmonary arterial hypertension. I initially thought my life was over and never…

30 Days of PH: Teach Me to Breathe

Carla Jean was diagnosed with pulmonary arterial hypertension at age 25. (Photo courtesy of Carla Jean) Day 4 of 30 This is Carla Jean’s story: In July 2020, I started feeling slightly out of breath when doing simple tasks. I attributed this to pandemic lockdown fatigue, a lack of…

30 Days of PH: Reflections on Our Awesome Community

Photo courtesy of Colleen Steele Day 30 of 30 This is Colleen Steele’s story: My son Cullen had pediatric idiopathic pulmonary arterial hypertension (IPAH) and received a heart and double-lung transplant seven years ago. As a columnist and forum moderator for Pulmonary Hypertension News, I strive to help others…

30 Days of PH: Never Give Up and Keep On Shining

Photo courtesy of Justin Anthony Day 29 of 30 This is Justin Anthony’s story: It was the Easter holiday of 2007, and I made my way to my hometown of Greytown, KwaZulu-Natal, in South Africa. I’d been a student at Wits University, and always loved going home on holiday…

30 Days of PH: I Am Capable of So Much More Than I Thought

Photo courtesy of Sara Eldaly Day 28 of 30 This is Sara Eldaly’s story: Suffering from a chronic illness is an undefined feeling. I was only 24 years old at my diagnosis, newly married, and extremely excited about my upcoming life and plans. I then found myself fainting in…

30 Days of PH: My Vantage Point as PH Mom and Registered Nurse

Photo courtesy of Carrie Walls Day 26 of 30 This is Carrie Walls’ (@boymomx3walls, @prayersfortriston) story: The first time I heard the words “pulmonary hypertension” (PH), I was sitting next to my son’s hospital bed after his first open-heart surgery. I had no idea what it meant…

30 Days of PH: My Daughter Is Living Her Best Life

Photo courtesy of Jessica Nichols Johnson Day 25 of 30 This is Jessica Nichols Johnson’s (@7261Johnson) story: Kayleigh Johnson is a typical teenager with one huge difference. She fights for every breath she takes. When Kayleigh was born, she had two holes in her heart. Her doctors decided…