Ellie is a cat lover who lives and works in Cambridge, UK. She was diagnosed with pulmonary hypertension in 2017 at age 22, having just graduated university with an English literature degree. Now she works in higher education and dedicates her spare time to raising awareness about PH, reading books, singing and going for walks in the countryside (when not too breathless!). She also, in stereotypically English fashion, drinks a lot of tea — preferably with a slice of cake!
The most commonly asked questions I get about my pulmonary hypertension (PH) are: what were your symptoms prior to diagnosis, and how did you get diagnosed? People in the PH community are always keen to know the answers as the disease…
I’ve written before about how I have adjusted my diet since my pulmonary hypertension diagnosis, but this isn’t something I’ve always found easy. When struggling with mental health or the usual pressures of daily life, it can be…
Physical and mental health are closely linked. Many people who struggle with long-term conditions like pulmonary hypertension (PH) also struggle with things like anxiety. Both PH and anxiety can affect heart rate,…
I received a call a couple of days ago from my pulmonary hypertension (PH) specialist center telling me that I am a high-risk patient and need to self-isolate. I’d already been social distancing for a while, but hearing…
I have been living with pulmonary hypertension for more than two years. When I was first diagnosed, doctors thought I was a nitric oxide responder. They told me that was good because it meant there were more medications that could potentially help me. I was put on…
If you have a health condition, using public transport can be tricky. Personally, standing for long periods of time can be tiring. My legs ache, and as a result, I often need to sit during my commute. Unfortunately, for many people, commuting to work via public transport is a necessary…
One of the hardest parts for me about having a serious chronic illness is telling people about my condition. I’m always worried that they will look at me differently. And every time I inform someone new about my diagnosis, I have to relive it. Before my pulmonary hypertension (PH)…
I have little sympathy for those who exclaim that they don’t like hospitals — no one does! But for many of us, they are an unavoidable part of life. I can understand the inclination to avoid them at all costs, but the day might come when you no longer can.
This is probably the hardest column I’ve written to date. It’s about how I deal with thinking about the future. I have been a planner my entire life. Whether it was daydreaming about the color scheme of my wedding when I was a kid, creating a detailed itinerary for trips,…
In last week’s column, I wrote about the challenges of making time for rest. This week, I want to address another significant lifestyle adjustment I’ve made since my diagnosis: my diet. A low-salt diet is recommended for those with pulmonary hypertension. Unfortunately, all of my favorite foods…
When a person is diagnosed with a serious condition like pulmonary hypertension (PH), they must alter their lifestyle. One of my biggest challenges has been learning to take it easy. I like to keep busy, and I tend to get a bit glum if I lie in bed all day…
Holding down a job when you have a chronic illness can be really tricky. First, there’s the time you’ll need off for appointments. Secondly, there’s the fact that you’ll need more sick days than the average Joe. This can make going after your dream job seem impossible. I was…
Get regular updates to your inbox.