Blooming Hope – a Column by Anna Jeter

Anna is an artist and writer based in Minnesota. Diagnosed with pulmonary hypertension at the age of 4, she fought for 19 years before receiving a lifesaving heart-lung transplant in 2018. Despite complications following transplant, she was discharged back home eight months later. Anna now manages life with a tracheostomy and relies on supplemental oxygen, but her life remains full of hope and wonder, which she strives to share through her writing. In addition to her role as a columnist for Pulmonary Hypertension News, Anna works as a photo editor, a photographer, and also runs her own art business.

My College Experience Was Great — and Yours Can Be, Too

When I was deciding which college to attend, my health was declining because of pulmonary hypertension (PH). That made my college decision — which for most people is marked by excitement and opportunity — clouded by my needs for accessibility and support. A few weeks before making…

The Day-to-Day Symptoms I Experienced While Living With PH

Pulmonary hypertension (PH) patients use several analogies to describe what it feels like to live with the illness each day. One example is that it’s akin to breathing the air at the top of Mount Everest. Another is that the exhaustion makes us feel like we’re constantly running a marathon.

Celebrating Donors and the Gift of Time

It’s difficult for me to identify when an organ transplant became a genuine possibility within my personal journey. For my parents, it was certainly when I was just 4 years old, at my pulmonary hypertension (PH) diagnosis. Like many, they heard from doctors that I would likely live only…

What Daily Disease Management Looks Like With PH

I was diagnosed with pulmonary hypertension (PH) at the young age of 4, so I don’t really remember life without it. The tasks and routines associated with PH were a part of my day before I’d even begun elementary school. Because I was so young, I was able to give…

Nourishing My Body While Living With an Illness

While I cringe a bit at the term, I would definitely consider myself a foodie. Food Network often plays in the background while I work. I was gifted a pasta-maker for Christmas, which I now use weekly, and I’m currently experimenting with sourdough bread recipes. I’ve loved food and everything…

A Life That’s Rarely Anything but Rare

The day you get called in for a transplant is a strange one, filled with all sorts of extreme experiences. Something most people might not know is that, in an attempt to execute the transplant procedure efficiently, patients are taken to the operating room before the donor organs even arrive…

How My Dog Benefits My Health

My family loved dogs before I even came into the picture. My parents’ first child was a golden retriever named Sadie. Although I don’t remember her, she lives on through our family’s dog stories. The first dog I remember properly, the one I’d consider my childhood pet, was Chester. We…

Why I Make an Effort to Keep Up Appearances

By the end of my freshman year of college, it had become a bit of a joke that I would never be caught around campus in sweatpants. While my roommates and peers relished the university lifestyle of casual clothing, I was rarely seen in anything other than a fully put-together…


A Conversation With Rare Disease Advocates