Blooming Hope – a Column by Anna Jeter

Anna is an artist and writer based in Minnesota. Diagnosed with pulmonary hypertension at the age of 4, she fought for 19 years before receiving a lifesaving heart-lung transplant in 2018. Despite complications following transplant, she was discharged back home eight months later. Anna now manages life with a tracheostomy and relies on supplemental oxygen, but her life remains full of hope and wonder, which she strives to share through her writing. In addition to her role as a columnist for Pulmonary Hypertension News, Anna works as a photo editor, a photographer, and also runs her own art business.

3 ways I prepared as a PH patient for heart-lung transplant

When I was diagnosed with pulmonary hypertension (PH) in 1999, the subject of organ transplant was introduced almost immediately. Doctors explained to my parents that PH was terminal, and that transplant, usually of the heart and lungs, was an option for extending life. For the next 14 years, transplant…

My anxiety about the future manifests in curious ways

A few years ago, I shared an image on social media of my growing library. I love thrifting books just as much as I love reading them. It’s been a joy to invest in my collection of secondhand books in adulthood. A friend and fellow chronic illness warrior commented…

Finding community among those with heart illnesses

Most of my memories with pulmonary hypertension (PH) can be summarized with three words: shortness of breath. I was always trying to catch my breath anywhere I went. But over time, as predicted, the shortness of breath began to cause other issues. As my pulmonary pressures worsened, my…

In Christmas season, my family’s togetherness is not guaranteed

Over the years, the holidays have held many different meanings for me. While I’ve felt an abundance of joy and tradition associated with these celebrations, my lifelong battle with pulmonary hypertension (PH) and other conditions has added some complicated layers to the equation. Growing up, I had many years…


A Conversation With Rare Disease Advocates