Caregivers to loved ones are often metaphorical mountain climbers who begin their journey without prior experience or training. Equipped with the power of love and the persistence of hope, they move forward with all the emotional, mental, and physical strength they can muster. While chased by a diagnosis, caregivers help…
There are two sides to every story. For six years, as both a forums moderator and columnist for Pulmonary Hypertension News, I have shared my son’s pulmonary hypertension (PH) and transplant story from my perspective as a caregiver. I’m excited to announce that you can now read…
I’m tired of being lonely, and I’m lonely because I’m tired. The best time to write about this would have been July 11 for Cheer Up the Lonely Day, but that opportunity came and went with my dreams. I surreptitiously fell asleep and missed my deadline. Loneliness and…
Earth spins at approximately 1,000 miles per hour and orbits the sun at a mind-blowing 67,000 miles per hour. Doesn’t it feel like life on this planet picks up speed each year, as if we’re all trying to live faster than the world can turn? There are places to be,…
Hospital rounds are usually morning visits from a patient’s healthcare team to review their condition, treatment plan, and progress. The patient is examined, vitals are checked, and additional tests are ordered if needed. Tests can range from blood work or imaging to more invasive procedures such as cardiac catheterization. Depending…
Cornered. That is how my son Cullen, 25, and our family felt when he was diagnosed with pulmonary arterial hypertension in 2008. But being cornered isn’t as scary when you look around and see who’s in the corner with you. Compassionate and knowledgeable doctors, nurses, and social workers were…
I’m the almost-pour-milk-onto-my-mom’s-plate-instead-of-in-her-cup kind of tired. The dump-potato-chips-instead-of-cat-food-into-my-cat’s-bowl kind of distracted. The place-things-on-my-parents’-stairlift-instead-of-carrying-them-up-or-down-the-steps kind of exhausted. My name is Colleen Steele, and I have caregiver burnout! It’s not the first time I’ve burned the candle at both ends. I cared for my son Cullen, 25, many times through this level…
I think it is more effective to watch for good advice instead of asking for it. An Inc. article titled “25 Excellent Pieces of Advice That Most People Ignore” covers words of wisdom that often go in one ear and out the other. “It’s easy to find someone to…
It’s a beautiful day in the country for what appears to be the beginning of autumn. There are acres of trees, mostly green except for a few that have changed to gold. They’re casting a shadow over a lake, but on the other side sun is glistening on the water…
Many a new year has been greeted with the saying “Out with the old, in with the new.” That is a fair declaration of a calendar flip, but it’s implausible that people will change just as easily on Jan. 1. I’ve often honored New Year’s as if it were the…
“God Rest Ye Merry, Gentlemen” is one of the oldest Christmas carols. The lyrics, which have been altered numerous times to adapt to changes within the English language, are drawn from the Christmas story in the Gospel of Luke. In the 21st century, the common definition of rest is to…
It’s been a rough day. I change into my comfy clothes, pour a cup of tea, prop up my pillows, pull up a cozy blanket, and start to write. Others might open with “Dear Diary,” but I begin with a prayer: “Dear God, please help me …” As I mentioned…
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