When health issues strike, they can be devastating, turning your world upside down in an instant. You can’t just wish away a rare disease like pulmonary hypertension (PH); its future impact is a daunting unknown. Last week, I had an “aha!” moment with my young adult daughter, Kayla,…
Columns
Living with a rare disease like pulmonary hypertension (PH) presents unique challenges. Balancing work, your personal life, and your health can feel overwhelming for both patients and their caregivers. If you find yourself struggling to balance work and life with a rare disease, please know that you’re…
Summer, to quote Paulette from “Legally Blonde 2: Red, White & Blonde,” “makes me want a hot dog real bad!” When I picture scenes of summers past, I think of family and friends enjoying backyard barbecues, beach bonfires, camping trips, and outings to the ballpark. I can also…
Since May, I’d been faced with a challenge familiar to many women: finding the perfect dress for a wedding. Two close friends of mine were married last weekend, and I had the honor of attending the wedding and reciting original poetry during the ceremony. After my heart-lung transplant in…
“Never get a chronic illness; it’s really inconvenient for other people.” I stumbled upon a meme with this quote while scrolling through social media last week, and, wow, did it hit home! Can you relate? As someone managing pulmonary hypertension (PH) and other health conditions, I found this…
As I opened my email inbox, a headline instantly caught my eye: “Massive heat wave heading for USA next week.” This got me thinking about how heat affects those of us with pulmonary hypertension (PH). Here in sunny San Diego, many in our PH community are bracing…
The approach of summer always catches me off guard. For about six weeks between May and June, I can’t avoid keeping a packed schedule. Along with several holidays and birthdays, including my own, this period also marks the beginning of my busy season working as a photo editor. In…
With warmer months on the horizon, many of us eagerly await the fresh fruits and vegetables they bring. I’m one of those people who can’t wait for the fresh produce season. It benefits the pulmonary hypertension (PH) community, too, as we’re often advised to follow a heart-healthy…
When I was diagnosed with pulmonary hypertension (PH) in 1999, doctors prepared my parents for the reality I was facing. Just two weeks before my fourth birthday, they were told such words as “progressive” and “terminal.” The doctors set the trajectory of my PH journey before us,…
In previous columns, I’ve shared about my ongoing struggle to balance managing pulmonary hypertension (PH) with other health issues like chronic pain. Both conditions require constant attention to ensure optimal health and quality of life. One crucial aspect of living with chronic pain is describing it, which,…
Are you or your partner managing pulmonary hypertension (PH)? Does it make going out on traditional dates difficult? If so, don’t worry; I’ve got you covered. Date nights are essential to any relationship, but they can be challenging with PH and limited energy. That doesn’t mean we have…
When I was diagnosed with pulmonary hypertension (PH) in 1999, the subject of organ transplant was introduced almost immediately. Doctors explained to my parents that PH was terminal, and that transplant, usually of the heart and lungs, was an option for extending life. For the next 14 years, transplant…
