My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). He spent much of his childhood in the hospital, talking to doctors, answering endless questions, and experiencing one traumatic event after another. It’s no wonder that Cullen and many other pediatric patients are commonly described as wise…
When we think about natural disasters here on Texas’ Gulf Coast, we usually think about hurricanes. But as 2021 took off, we found ourselves dealing with an arctic winter blast instead. Because I am now on continuous oxygen, the weather is making things a bit more difficult…
“Why can’t she just get over it?” It would not surprise me if there were people asking themselves this question about me. Since receiving a heart and double-lung transplant six years ago, my son Cullen no longer has pulmonary hypertension (PH). Despite this dramatic change, I continue to advocate…
The Mayo Clinic describes phantom pain as pain that feels like it’s coming from a body part that’s no longer there. Experts believe these sensations can be real and originate in the spinal cord and brain. But depending on the experience, it can also be diagnosed as a psychological…
Sixteen years ago, I was lying in a hospital bed, unsure just how much my life and my family’s lives were about to be turned upside down. As a nurse, I thought I could be “fixed” and sent home. That was far from my…
According to NASA, the number of exoplanets, or planets beyond our solar system, is in the thousands and rising. Rare diseases are kind of like exoplanets. There are many, but unless you are a medical specialist, scientist, or patient diagnosed with one, you probably are unlikely to know much…
It’s no secret that the world is tough. When juggling its chaos, we often feel pressured to do more, and we quickly lose sight of what is most important. With a rare disease like pulmonary hypertension (PH), we also battle symptoms…
Save the Date: Feb. 11, 2021, at 7 p.m. ET. Join @pulmonaryhypertensionnews on Instagram Live for a live Q&A about sex with chronic illness and PH. The event is called “Sex on PHire – Sex Talk with Britt Foster.” Join Britt Foster and host Ally Macgregor as we discuss…
Having a chronic illness can affect a person’s relationship with their body. It can feel like their body has let them down because it’s not working exactly how it should. Before I was diagnosed with pulmonary hypertension (PH), I used to love…
I have read articles claiming that playing video games excessively can increase the risk of health problems. Instead, they encourage children to go outside and play, and adults to hit the gym. That sounds like solid advice for healthy individuals, but for those battling serious illnesses, video games can provide…
As I was watching the timeless movie “Pretty Woman,” I was struck by something Julia Robert’s character, Vivian, said: “People put you down enough you start to believe it. … The bad stuff is easier to believe.” She’s right. Hurtful words have left emotional scars in my mind. It has…
I love to keep busy. Ever since I was diagnosed with pulmonary hypertension (PH) in 2017, I have been keen to fill my days and avoid the listless feeling that comes from having little planned. In last week’s column,…
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