Columns

Using the Muppet Theory to Explain Anxious Episodes

Are you a Grover or a Bert? A Cookie Monster or a Kermit the Frog? You’re probably wondering what Muppets have to do with my journey living with PH. Stay with me. I recently discovered the Muppet Theory, thanks to a colleague who recently asked me if I…

My Version of ‘Living in the Moment’

“Live in the moment.” This saying is such a cliché in the chronic illness realm, yet I force myself to reply with some version of this daily when I am asked how I’m doing. My response usually is something along the lines of,…

PH Medications Add to My Symptoms

A large part of pulmonary hypertension management is taking the necessary medications to help ease symptoms and delay progression. Because pulmonary hypertension impacts more than just the lungs, many with this disease have a list of at least a dozen different medications to treat various…

Lessons on Persistence from the Desert

I love the desert. No, this is not a timely column post about Burning Man. Sorry to disappoint. I’ve really only been to the desert twice. The general inconvenience of traveling with pulmonary hypertension (PH) limited me before, and my doctor advised me to avoid high…


A Conversation With Rare Disease Advocates