Worth the PHight - a Column by Jen Cueva

workplace, fear, interview, less is more, unique, covid-19

Jen is a columnist and forum moderator for Pulmonary Hypertension News Today. Jen worked in nursing before the script changed upon her diagnosis of PH in 2005. Advocating and meeting those with PH has always been an essential part of her life. Her passion is to instill hope and remind others in the PH community that they are not alone.

In her weekly column, she delves into the roller coaster of emotions that come along with PH. Having this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey is meaningful and powerful for her. Jen lives in Southern California with her husband. Together, we PHight stronger.

Staying Positive During a Global Pandemic

As I write this, I am watching the news. Shocker, right? As of the writing of this column, 63 cases of COVID-19 have been reported in the greater Houston area, although that number undoubtedly will increase. Life has been full of unknowns, especially in recent weeks. It is overwhelming…

Why Is It so Difficult to Take Time to Pause?

Life is hectic, wouldn’t you agree? Some days I find myself overwhelmed from living with pulmonary hypertension and other coexisting medical issues. More days than not, I am inundated with emotions. But anyone living in today’s busy world can feel this way, too. We are often told how to…

My Passion and Hope Make Me Rare

This month, Bionews Services, the parent company of Pulmonary Hypertension News, is focusing on promoting Rare Disease Day with increased advocacy efforts. Several activities are planned worldwide, and I challenge you to locate an event near you. Rare Disease Day is the last day of February, and this…

Celebrating My 15-year PH Diagnosis Anniversary

Today is Valentine’s Day, y’all. I know that some of you are eating fancy chocolates and sipping wine, all the while blowing kisses to your love. But for me, Valentine’s Day brings an outpouring of mixed emotions. Fifteen years ago, my life was dismantled in more ways than I can…

My Smile Is Hiding Chronic Pain

If you saw me you would probably notice my bright blue eyes (thanks, Pawpaw) or my huge smile. You might not realize that behind the smile, I am hiding something. I have been hiding the chronic pain that has been affecting me for a long time. It’s not that I’m…

These Life Hacks Help Me While Living with PH

We don’t always have a choice about what life throws our way. But our response to challenges is something we can control. Living with pulmonary hypertension (PH), I don’t always have control over my body. With that lack of control comes frustration. However, I’ve found some coping strategies that improve…

Remembering that It’s OK to Not Be OK

Since my pulmonary hypertension (PH) diagnosis, others have told me repeatedly how strong I am. But on some days, I don’t feel as strong as they think I am. Even the strong grow weak and weary. But that doesn’t mean I’m not strong as I battle my PH. I have…

An Open Letter to My Family

Life is tough. Living with pulmonary hypertension (PH) and other illnesses impacts not only my life but my family’s lives, too. I have touched on this topic briefly in previous columns, but I don’t think I have shared just how much PH impacts us as a family. No matter…

Dealing with Post-holiday Fatigue and Sleep Issues

If you are like me, trying to balance life with pulmonary hypertension (PH) and coexisting illnesses is a full-time job. Add in the busy holiday season, and despite careful planning, I am left with a general feeling of malaise and lethargy. Though I don’t host any holiday celebrations at…