Worth the PHight - a Column by Jen Cueva

November is Pulmonary Hypertension Awareness Month, a good time to share a little more about my journey with y’all. My hope is that you will tell your stories and generate awareness about pulmonary hypertension (PH) within your communities. I was diagnosed in 2005. Because of my nursing background,…

When I received my pulmonary hypertension (PH) diagnosis I was in congestive heart failure. Since then, I have been taking diuretics to assist my body in getting rid of excess fluid and to treat my heart failure. Unfortunately, over time, the diuretics have damaged my kidneys. I was diagnosed…

Do you struggle to prioritize your health when confronted with life’s daily demands? It’s a tough job to balance everything, especially when you’re already exhausted. When living with pulmonary hypertension (PH), life can be messy and unpredictable. I tend to put others first, and my health drops to the…

As I work on my continuing education credits required to maintain my nursing license, I am reminded of how much I miss my days as a nurse. Prior to my diagnosis with pulmonary hypertension (PH), I worked in hospice and palliative care. The transition from nurse to patient…

On March 14, 1992, when my husband said, “In sickness and in health,” he had no idea just how important those five words would become. I’m sure that like most couples, we repeated our wedding vows quickly so that we could share that first “married couple” kiss. We were newlyweds,…

Nowadays, we pay for just about anything imaginable. But today is your lucky day! I’m offering free advice to those of you new to pulmonary hypertension (PH). Those who are “well-seasoned” may learn a few things, too. When I sat down to write this column, I thought back to my…

Traveling by plane can be stressful for anyone. Flying with pulmonary hypertension (PH) and other disabilities adds another dimension of stress and anxiety. My husband and I recently flew from Houston to San Diego. I was stoked about this trip and had been looking forward to it for months. My…

Managing pulmonary hypertension (PH) can be exhausting. Adding coexisting conditions makes it even more challenging. Like me, many people struggle to manage multiple illnesses. In addition to PH, I deal with chronic kidney disease (CKD), iron deficiency anemia, and a few others. It can be overwhelming. Some say…

The number of devastating natural disasters has increased significantly in the past several years. These billion-dollar disasters strike some states repeatedly. Therefore, residents in those areas realize the importance of preparedness. I stay on alert because I live on Texas’ Gulf Coast. I also live with pulmonary hypertension (PH)…

Pulmonary hypertension (PH) is a complicated disease. I am the first to admit that. I live in the mountains and the valleys of PH life daily, and often I am thrown curveballs. While it is understandable that others around me cannot comprehend the impact PH has on my body, dealing…

Surviving day in and day out with a life-threatening illness like pulmonary hypertension (PH), well, simply sucks. My struggles with numerous symptoms and medication side effects weigh me down and rapidly deplete me. Uptravi (selexipag) and Revatio (sildenafil) can cause horrific side effects, and these are my two primary…