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6 of the Best Apps for Chronic Illness Management

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage your chronic…

Why Is Pulmonary Hypertension Considered a Zebra?

According to the Pulmonary Hypertension Association of Canada, pulmonary hypertension (PH) is a serious, progressive and potentially fatal lung disease. PH causes high blood pressure in the lungs due to inflammation or scarring in the pulmonary arteries. Untreated, PH can lead to weakness in the right side of the heart,…

6 Ways to Help You Take Care of Your Lungs

We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it is even more important to look after these vital organs as best we can. The Rush University Medical Center has some useful advice to…

Treating Depression When You Have Pulmonary Hypertension

Life with pulmonary hypertension (PH) can be difficult and challenging, so it’s no wonder that many people living with the disease also suffer from emotional issues such as depression and anxiety. MORE: Understanding the struggle of pulmonary hypertension patients. If you feel you’re not coping well emotionally, it’s important you speak to…


A Conversation With Rare Disease Advocates